What a wonderful way to get the message out there. Suffering from a seizure disorder, I know what it’s like to be different, and you’re showing courage in your effort to educate the public. Way to go!
Naomi De Bruyn
My son was born prematurely in 1958. He weighed 2 lbs. 13 oz. and we didn’t think we would ever get to bring him home. But when he reached 5 lbs. we brought him home.After he learned to walk, I took him to get some new shoes and the shoe salesman showed me that the heel of his right shoe was pristine; it had never touched the ground.We all commented on his unusual gait and sometimes called him “twinkle-toes” as he seemed to walk on tiptoe, at least on his right leg.When we brought him home, nobody told us he might have cerebral palsy. After taking him to a specialist, that was the diagnosis. We were told to give him exercises such as you described, and they hurt him. A lot. So the doctor said that maybe when he got older we could do some surgery on that tendon and lengthen it, especially if he wanted to play sports.The only drawback he can see now that he’s a middle-aged man is that his gait seems to affect his back. On occasion, he goes to a chiropractor who literally “straightens him out.”I’m glad that you have this blog so others will know more about this condition.
I have MS and I think it is funny when people tell me how brave I am. Brave? We don’t really have a choice do we? I guess we could spend our days whining but that would make our lives miserable. Personally I wouldn’t want that. These are the cards we were dealt so we have fun and use our talents to hopefully make our lives better.
I have mixed emotions as I read your blog. I feel saddened that you did not have support from your father. I feel angered that you are subjected to humiliation from classmates. I feel sympathetic for you and others with the same disability. I feel grateful for teachers and therapists who push you to not give up. I feel hopeful that you are able to rise above and fulfill your writing aspirations. Thank you for making me feel.
I am so glad to have come across your blog. YOU have articulated the thoughts and feelings in my head. I too have CP, and many of your entries were as if I had written them. I love your elifant legs refrences. I always tell my husband I feel like a broken webble wobble and or my legs and feet are strings with rocks at the ends. weak and clumbsy.
I’ve been there, so I understand only too well. Several years ago, we went to Epcot Center with my daughter and her family. When we started the long walk back to the parking lot, I was already ready to cry. I counted all the million steps it took to get to the car. It had to be a million, had to.
I am so glad to have come across your blog. YOu have articulated the thoughts and feelings in my head. I too have CP, and many of your entries were as if I had written them.
I love your elifant legs refrences. I always tell my husband I feel like a broken webble wobble and or my legs and feet are strings with rocks at the ends. weak and clumbsy.
I also am so glad I found your blog, my brother has CP and epilepsy but I never knew there were different types. You are an inspiration! Keep it up!