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Recent Posts
- Disability Pride and Why It Matters
- In the Company of Elivra
- Thirteen Years
- Waiting for Max Shadow
- Learning to Like Myself – A Reflection
- The Labyrinth of Me
- Levels and Lymphocytes
- The Impossible Mountain
- The Able Body and the Mountain Within
- A Maven Clad In Raven’s Clothes
- The Cyclone That Life Can Be
- A Personal Victory!
- The Language of Smiles
- A Dance with the Waves
- A Journey of Ten Years
- The Lessons I’ve Learned
- Boats of Many Colours
- The Light of Small Joys
- The Deity of the Waves – Thoughts on Chemo and the River Within
- This Is My Journey
- Pushing Through
- Happy Birthday Max Shadow!
- Bodily Able – A Reflection
- The Power of Forgetting
- Captain Maven and the Shadow Man: AVAILABLE NOW!
Author Archives: Jamieson Wolf
Waiting for Paulsen
This weekend has been a pain in the ass. Literally. I woke Saturday with a sharp pain in my lower back. This pain saw fit to move down to my rear end. It hurt to sit, it hurt to lie … Continue reading
Posted in Muscles, Spasms, Walking
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An Indirect Gift
I’m pretty sure that my stubbornness has a lot to do with proving my father wrong. Growing up, he expected perfection. As I was born with an imperfection, I ws never worthy of love in his eyes. It took me … Continue reading
Posted in self esteem
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Growing Wings
I feel like I am growing wings. Surely this is what it must feel like: shoulder muscles moving and shifting under my skin, pulses that push at the skin that holds them back. A deep throb at my shoulder blades … Continue reading
Posted in Muscles, Spasms
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Cybil
The twin inside me is always active. He seems to want a life of his own. I wonder, vaguely, if I should give him a name. But I’m a firm believer that if you give something a name, you give … Continue reading
Posted in Muscles, Spasms, swelling
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Doubtful Disability
A co-worker asked me this morning why I take so much Tylenol. I was at a loss. I didn’t know how to respond. I’m usually a private person when it comes to my difficulties, the twin that is inside me. … Continue reading
Posted in self esteem
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I am the Walrus
My legs feel like toothpicks today. It feels like I’m walking on a tightrope; my balance is off and I feel like my knees can’t bend. I know without lifting my pant legs that I have Elephant Legs today, that … Continue reading
Posted in Muscles, Walking
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At Home In My Skin
I wonder if I will ever feel at home in my own body. Most people undergo a time during their adolescence where their bones are too long, their lanky legs and arms flailing and seemingly too long for their body. … Continue reading
Posted in Muscles, self esteem, Walking
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The Evil Twin
I do actually have a twin. That’s what makes having a twin inside me so interesting; I do not talk to my real twin when my internal twin is all too talkative. He has added to his repertoire. I sat … Continue reading
Posted in Spasms, swelling, Walking
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Musical Muscles
It feels as if I have been in a marathon. Or perhaps been playing a hundred piece orchestra all on my own. The past few days have not been ones of comfort. I have hardly been able to type, let … Continue reading
Posted in Muscles
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Laughing Diamonds
Today, I am a bevy of nerves. My muscles twitch underneath my skin, vibrating within their shell and I wonder if one day they will work themselves free. The weekend was spent in almost total comfort, something that hasn’t happened … Continue reading
Posted in Muscles, Spasms, Walking
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