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Recent Posts
- The Lessons I’ve Learned
- Boats of Many Colours
- The Light of Small Joys
- The Deity of the Waves – Thoughts on Chemo and the River Within
- This Is My Journey
- Pushing Through
- Happy Birthday Max Shadow!
- Bodily Able – A Reflection
- The Power of Forgetting
- Captain Maven and the Shadow Man: AVAILABLE NOW!
- The Many Ways of Mavenclad
- The Light Through the Trees
- Someone I Used to Know
- The Challenges I Overcome
- Relearning How to Live
- Captain Maven and the Shadow Man – Coming Soon!
- On the Shores of Acceptance
- The Maybe of Mavenclad
- Embracing the Changing Landscape
- A Star Upon the Waves
- Living My Best Life Two Steps at a Time
- One Day at A Time
- I’m On TV! Let’s Chat with Derick Fage
- Happy Birthday Little Yellow Magnet!
- On Becoming Aware
Category Archives: Spasms
The Challenges I Overcome
I was asked to give a talk to the people I work with to celebrate the International Day of Person’s with Disabilities. These are the notes that I wrote. I planned to read them out loud, but ended up just … Continue reading
Posted in Autoimmune Deficiency Disease, Challenges, Falling, fatigue, Lesions, self esteem, Small Victories, Spasms, Speech, Symptoms, Writing
Tagged Challenges, Depression, exercise, flat mountains, Grateful, international persons with disabilities day, Overcome, Painting, Small Joys, Talking, Typing, walking, Writing
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Relearning How to Live
This is a piece that I was asked to write for today, the International Day of Person’s with Disabilities. It was published in a newsletter at work and while it was nerve wracking to put myself out there like that, … Continue reading
Posted in Bladder problems, Brain Fog, Canes, Depression, discomfort, fatigue, Spasms, Speech, Tremors, Writing
Tagged Balance, Cerebral Palsy, Challenges, Grateful, Living, Multiple Sclerosis, Pain, Spasms, Symptoms, Tremors, Vertigo, walking
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The Stone Man Speaks
Multiple Sclerosis is a curious disease, just as Cerebral Palsy is a mysterious disability. Even after so many years of living with them, they always like to keep me guessing…mostly because I’m no longer sure which one does what. It … Continue reading
Posted in Falling, Spasms, Speech, Symptoms, Talking
Tagged Ami McKay, Cerebral Palsy, Cybil Paulsen, Jack Nicholson, Max Shadow, Multiple Sclerosis
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A Hard Way To Learn a Lesson
I’m never counting steps again. Here’s why: On the way home, my bus broke down due to all of the snow that has been falling today. The driver didn’t know when another bus would come but he gave an hour … Continue reading
Posted in Spasms, The MS Walk, Walking
Tagged Kindness, Stubbornness, walking, Winter
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The Lion and the Internal Orchestra
I’d like to take a moment to talk about pain. Everyone experiences pain differently. Maybe it’s muscle pain or internal pain. Perhaps it’s a mixture of both. For myself, there is no rhyme and reason to it. My Multiple Sclerosis … Continue reading
Posted in Brain Fog, Depression, discomfort, Muscles, Spasms
Tagged Cerebral Palsy, Multiple Sclerosis, Orchestra, Pain, Strength, Symptoms, Tattoos
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Today Is A New Day
On December 30th, 2012, I woke up to find that my world as I knew it had changed. I woke not knowing how to move my body. It was no longer mine and I was no longer able to control … Continue reading
Posted in Balance, Brain Fog, Depression, Falling, Fatique, Spasms, Speech, Symptoms, Walking
Tagged A New Day, Celebration, Change, Divorce, Gratefulness, joy, Thankfulness
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I Got This
The other day, when I was talking to someone, I mentioned how meditation was really helping me deal with my Cerebral Palsy and Multiple Sclerosis. She looked at me, her mouth drawn into a frown of sympathy, and said “Oh, … Continue reading
Heavy Metal Days and the Strength Card
I am in pain of some sort twenty-four hours a day, seven days a week. I never get a vacation or a day off, I never get to go on a holiday from the pain. It is my constant companion … Continue reading
Posted in Brain Fog, discomfort, Fatique, Spasms
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Falling Through the Air
My left leg has been spasming for five days. It’s always in the same place, the thigh. The spams aren’t painful, but strong. They last for a few seconds, the longest has been close to thirty. Normally, my spasms come … Continue reading