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Recent Posts
- Embracing the Changing Landscape
- A Star Upon the Waves
- Living My Best Life Two Steps at a Time
- One Day at A Time
- I’m On TV! Let’s Chat with Derick Fage
- Happy Birthday Little Yellow Magnet!
- On Becoming Aware
- On What You Can’t See
- On Forgetting Fear
- Visible Invisible
- Have Cane Will Travel
- Letting Go Of Fear
- Claiming My Shadow Self
- Letting Go and Holding On
- Walking the Walk for the Seventh Time
- Stress and the Shadow Man
- The Descent – A Video Excerpt
- Fear and Covid-19
- Looking for the Oracle
- The Descent and Smashing Tropes
- The Story Within My Self – Love and Lemonade out now!
- The Stone Man Speaks
- The Whispering of the Trees
- Listening to the Body is the Hardest Thing to Do
- What Max Shadow Taught Me
Category Archives: Spasms
The Stone Man Speaks
Multiple Sclerosis is a curious disease, just as Cerebral Palsy is a mysterious disability. Even after so many years of living with them, they always like to keep me guessing…mostly because I’m no longer sure which one does what. It … Continue reading
Posted in Falling, Spasms, Speech, Symptoms, Talking
Tagged Ami McKay, Cerebral Palsy, Cybil Paulsen, Jack Nicholson, Max Shadow, Multiple Sclerosis
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A Hard Way To Learn a Lesson
I’m never counting steps again. Here’s why: On the way home, my bus broke down due to all of the snow that has been falling today. The driver didn’t know when another bus would come but he gave an hour … Continue reading
Posted in Spasms, The MS Walk, Walking
Tagged Kindness, Stubbornness, walking, Winter
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The Lion and the Internal Orchestra
I’d like to take a moment to talk about pain. Everyone experiences pain differently. Maybe it’s muscle pain or internal pain. Perhaps it’s a mixture of both. For myself, there is no rhyme and reason to it. My Multiple Sclerosis … Continue reading
Posted in Brain Fog, Depression, discomfort, Muscles, Spasms
Tagged Cerebral Palsy, Multiple Sclerosis, Orchestra, Pain, Strength, Symptoms, Tattoos
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Today Is A New Day
On December 30th, 2012, I woke up to find that my world as I knew it had changed. I woke not knowing how to move my body. It was no longer mine and I was no longer able to control … Continue reading
Posted in Balance, Brain Fog, Depression, Falling, Fatique, Spasms, Speech, Symptoms, Walking
Tagged A New Day, Celebration, Change, Divorce, Gratefulness, joy, Thankfulness
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I Got This
The other day, when I was talking to someone, I mentioned how meditation was really helping me deal with my Cerebral Palsy and Multiple Sclerosis. She looked at me, her mouth drawn into a frown of sympathy, and said “Oh, … Continue reading
Heavy Metal Days and the Strength Card
I am in pain of some sort twenty-four hours a day, seven days a week. I never get a vacation or a day off, I never get to go on a holiday from the pain. It is my constant companion … Continue reading
Posted in Brain Fog, discomfort, Fatique, Spasms
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Falling Through the Air
My left leg has been spasming for five days. It’s always in the same place, the thigh. The spams aren’t painful, but strong. They last for a few seconds, the longest has been close to thirty. Normally, my spasms come … Continue reading
When the Invisible Becomes the Visible
I’m lucky, I know that. Unlike a lot of other people who suffer with Multiple Sclerosis or Cerebral Palsy, mine hide most of the time. I wear them under the skin and the way they affect my body usually can’t … Continue reading
Pushing Past the Boundary
I took another step on my path to wellness this week. On Tuesday, I met with a personal fitness instructor. She designed a work out that I could do that kept my balance issues in mind. She took me through … Continue reading
Posted in Balance, Muscles, Spasms
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