Category Archives: Spasms

The Challenges I Overcome

I was asked to give a talk to the people I work with to celebrate the International Day of Person’s with Disabilities. These are the notes that I wrote. I planned to read them out loud, but ended up just … Continue reading

Posted in Autoimmune Deficiency Disease, Challenges, Falling, fatigue, Lesions, self esteem, Small Victories, Spasms, Speech, Symptoms, Writing | Tagged , , , , , , , , , , , , | Leave a comment

Relearning How to Live

This is a piece that I was asked to write for today, the International Day of Person’s with Disabilities. It was published in a newsletter at work and while it was nerve wracking to put myself out there like that, … Continue reading

Posted in Bladder problems, Brain Fog, Canes, Depression, discomfort, fatigue, Spasms, Speech, Tremors, Writing | Tagged , , , , , , , , , , , | Leave a comment

The Stone Man Speaks

Multiple Sclerosis is a curious disease, just as Cerebral Palsy is a mysterious disability. Even after so many years of living with them, they always like to keep me guessing…mostly because I’m no longer sure which one does what. It … Continue reading

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Listening to the Body is the Hardest Thing to Do

As much as I’m thankful for the multiple sclerosis and what it’s taught me, there are times that it makes me angry and pisses me off. There is so much that I try to do and, most days, I succeed. … Continue reading

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A Hard Way To Learn a Lesson

I’m never counting steps again. Here’s why: On the way home, my bus broke down due to all of the snow that has been falling today. The driver didn’t know when another bus would come but he gave an hour … Continue reading

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The Lion and the Internal Orchestra

I’d like to take a moment to talk about pain. Everyone experiences pain differently. Maybe it’s muscle pain or internal pain. Perhaps it’s a mixture of both. For myself, there is no rhyme and reason to it. My Multiple Sclerosis … Continue reading

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Today Is A New Day

On December 30th, 2012, I woke up to find that my world as I knew it had changed. I woke not knowing how to move my body. It was no longer mine and I was no longer able to control … Continue reading

Posted in Balance, Brain Fog, Depression, Falling, Fatique, Spasms, Speech, Symptoms, Walking | Tagged , , , , , , | Leave a comment

I Got This

The other day, when I was talking to someone, I mentioned how meditation was really helping me deal with my Cerebral Palsy and Multiple Sclerosis. She looked at me, her mouth drawn into a frown of sympathy, and said “Oh, … Continue reading

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Heavy Metal Days and the Strength Card

I am in pain of some sort twenty-four hours a day, seven days a week. I never get a vacation or a day off, I never get to go on a holiday from the pain. It is my constant companion … Continue reading

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Falling Through the Air

My left leg has been spasming for five days. It’s always in the same place, the thigh. The spams aren’t painful, but strong. They last for a few seconds, the longest has been close to thirty. Normally, my spasms come … Continue reading

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