Who Would I Be?

I often wonder what I’d be like if I had been born without Cerebral Palsy.

It’s an interesting thought. Would I be any different than I am today? I know that I would be able to walk properly, that I wouldn’t lose my balance quite as often. I would be able to work the buttons on my shirts with ease, ties my shoe laces with no problem at all. I’d be able to write neatly, have better developed motor skills.

But aside from all that, would I be different?

Having to fight an unseen foe all my life has given me quite the thick skin. It’s given me strength and made me stubborn enough to deal with life’s difficulties. I’ve had to learn to rely on myself for a lot of things because of my disability. I’ve had to learn to deal with anger at an earlier age than most people. I’ve had to learn to deal with disappointment and focus on the positives.

If I didn’t have Cerebral Palsy, would I be different?

Would I be less patient? More needy? More arrogant? Would I depend more on others, be more aggressive, less optimistic? Would I be a difficult person to deal with?

I don’t know, but it’s food for thought.

Despite my Cerebral Palsy, I’m happy with who I am, with who I’ve become. I think that, perhaps because of my disability, I’m a better person.

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Cowardice

I am counting again.

1-2-3-4-5-6-7-8-9 

My shoulders are getting worse.

The pain in the right shoulder has moved down so that I can feel the spasms in my right side. Now the tips of my fingers are numb and the rest of my hand is quickly following suit.

I try rolling my shoulders and neck to relieve a bit of the pressure, like someone is pressing down on me with both hands, pushing me into the ground.

I am rewarded with a sharp jab, a hot flash of pain moving down my arm and further down my side. I can now feel the muscles on my left side tightening in sympathy of the right.

And still the beat of music, that tattoo of rythem, pulses under my skin. It sings in time to the beat of my heart, slow and steady and there.

But still I type, still I write, still I walk. I will not allow myself to crumble and fall.

That would be cowardice.

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Handicaps Are So Annoying

I am hurting all over today.

I go to get up for lunch and a sharp, excruciating pain shoots up my leg. My right foot is in agony; every time I take a step a whimper escapes my lips even though I try to keep it quiet, try to keep it in where the whimpers may turn into a nightmare when I sleep.

But it escapes my mouth anyway, wanting to share its sound with others. A co-worker stops me and asks if I’m alright.

“I’m fine.” I lie.

“Are you having trouble limping?” she asks.

“Yes, but it’s no biggie.” I say. “I’m fine.”

“You should think of getting better shoes.” she tells me. “That might help.”

I look down at my nice black dress shoes with their special soles that provide extra comfort, their jell insole that cushions my foot. “Yeah,” I reply lamely. “That would help.”

“At least you’re not handicapped,” she says. “My sister has MS and she’s always bitching and moaning about how much pain she’s in. She can get a little annoying.”

I grimace. She sees my face and looks concerned.

“Did I say something wrong?” she asks. I think of what she said and how it revealed exactly who she is.

“No,” I say. “You didn’t say anything wrong at all.”

I limp away down the hallway, feeling her eyes drill into the back of my head.

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Tingle Jingle

I’m still having trouble feeling the fingers on my right hand.

They’re better than they were last week; I’m no longer finger painting, but instead can feel tingls, needles in my hands instead of where they normally are in my feet and legs.

My right shoulder is still convulsing. It’s as if it’s having a breakdown of some sort underneath my skin; may-hap it had a fight with my shoulder bone? Maybe my body is rejecting the muscles that are there as inferior?

The pain is less intense now but I think that is because I’ve gotten used to it. I’ve adapted to the pain, dulled it out, become numb to it. I’m almost positive of this because, if there was no pain, wouldn’t I be able to feel my fingers?

The tips are numb and feel jingley, tingley; needles in my fingers taking samples of blood, maybe, or perhaps they are ghost fingers, phantom fingers that reside somewhere else than my physical body?

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Can You Feel the Vibrations?

Today my legs are singing to me.

 I picture them like saws, being bent and hit to create music that is oddly pleasing to the ear. I can’t stand today; I’m at the water cooler and I can feel them vibrating to a music only they can hear.

I’m thankful that I’m wearing pants because I know my legs are shaking, moving, vibrating, jiggling. It’s like there’s an earth quake and it’s only beneath my feet, as if I’m on a plate under the earths surface that shifts when I walk on it.

Every time I take a step, I feel sharp pains in the soles of my feet as if my feet are protesting every step I take.

In a way, I guess they are.

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Shuffling

I feel like I am dancing today.

My legs feel heavy, my feet are like weights. I feel like I am walking through sand or perhaps jello. No matter how hard I try, I can’t seem to life my feet very high off of the ground.

I pretend that I am dancing, shuffling along making a scruffy noise to dance to, music of my own making. When really I am not able to walk very well. Because of the shuffling, because I can’t lift my feet, I trip a lot today.

Cracks in the road that others would have no trouble with, even cracks that aren’t there, I trip over them. People just call me a klutz; if only they really knew. I trip over everything.

Even my own feet.

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Filled With Pride

I thought of my first physiotherapist today.

 When I was in elementary school, a woman would visit me once or twice a week to work through a series of exercises with me that were supposed to help strengthen my legs and my back. I would be pulled out of class and go to the nurses room where a mat would be laid out for me.

The physiotherapist, a wonderful woman with short curly brown hair and a nice smile, would get me to take off my shoes and socks and lie down on the mat. She would take one foot in her hand and stretch it, lifting the leg into the air and pressing down on the foot.

“This will stretch out your muscles,” she would say.

“It hurts.”

“Life hurts, Jamie.” she said.

She would make the leg fold in on itself, as if I were pulling my knees up to my chest and then repeat the same pushing and pulling exercise with the other leg.

“Have you been doing your exercises at home?” she would ask.

“Yes,” I said, knowing this was a lie. My father did not like anything that showed weakness. I was forbidden to do my exercises at home. My father thought having a cripple for a son was a weakness and an insult to his pride.

She would make me do ab crunches. I was able to do these with few problem. I could not do sit ups and still can’t. I’m not able to get my muscles to cooperate with me, I couldn’t get them to do what I wanted to do.

She would make me do push ups too, to help strengthen my upper body. I couldn’t do normal push ups and instead pushed myself up with my arms from the knee up. My legs would not support me if I tried to do regular sit ups.

After each of these sessions, I would be so sore I could barely walk. I would shuffle back to class, legs and arms screaming at me for putting them through such torture.

Walking through the hallways, the other children would stare at me, my difficulty walking. I would look at the floor, ignoring their stares.

I would pretend that they were jealous of me, wanted to be me. In reality, I think they were frightened of me because I was different.

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Elastic Legs

I think my legs are made of elastics.

Last night I stood at the bathroom sink, brushing my teeth. My legs felt as if someone were pulling my muscles taunt, stretching them to their full length. I had to keep moving from one foot to the other, knowing that if I didn’t, my balance would give out.

I felt the tightness of them all the way up the back of my legs, could feel the front of my legs throbbing softly as I tried to fight an ever lasting battle with my body.

I had an image of someone plucking a string inside my leg, causing everything else to vibrate and hum. I wonder if the spasms are my bodily music, it’s own symphony that plays on whether I want it to or not.

In bed, I stretch out my legs, feeling my calves throb and harden, becoming the elephant legs that I dislike so much. I’m not able to find a comfortable position and the pain, soft and throbbing along my body like a lovers touch, sends me into sleep.

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A Hurtful Lover

I feel like I am wearing someone elses feet. Today it has been a chore to walk, to take things one step at a time. I haven’t had a day like this in some time, where I have to remove myself from my body, almost as if I am floating alongside it.

My feet feel jelly like, filled with water. They are heavy and it’s all I can do to will them to move. Maybe body parts, like the brain, can be stubborn? I wonder if I prick the soles of my feet with a pin if water would pour out?

Walking has always been a chore for me, a daily exercise in frustration. I have to be careful how much weight I put on them, how much I let them carry me along. Sometimes, if I’m not careful, if I’m not paying attention when I walk, they will turn into face each other as if in greeting.

I know it’s a negative image to look at this twin inside me like an infection. It’s not a disease, nothing like that. More like a parasite that needs me, that requires that I live and breathe for its own survival. I roll my head in hopes that the muscles in my shoulders and neck will loosen and am rewarded with a flash of pain that flies up my neck.

I touch the skin there and it is hard and taunt; the muscle underneath responds to my touch by spasming again, by pressing against my skin.

Maybe I should look at this twin, this other me, like a lover that likes pain instead of a gentle touch? One that is in to domination, controlling my body and my movements so that I move to it’s will?

It’s certainly a better image than an infection.

Besides, infections go away. I was made this way.

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Fingerpainting

Today I am not able to feel my fingers.

My shoulders have been spasming all day and I can feel the muscles forming themselves into something resembling a sailors knot or a slip knot that will come undone when it is ready.

My right hand feels numb as the spasms move themselves down my arm; maybe there wasn’t enough room for them in my shoulders; maybe the spasms are like an infection that moves inside of me, targeting a different place each day?

I move my fingers along the table in front of me, slowly as if I were caressing it. I can feel tingles and needles again, those hateful needles that haunt me.

I know my fingers are there because I can move them, I can see them. I move them in front of my face, marveling at the face that I can’t feel them. They are like ghost fingers, someone elses fingers and I wonder if I can make them do things that I normally wouldn’t.

I feel like my fingers have been dipped in fingerpaint, perhaps blue as it’s a nice colour, that is numbing and dulling the sensatinos I would normally be feeling.

I flex my hands and wonder who they belong to.

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