Filled With Pride

I thought of my first physiotherapist today.

 When I was in elementary school, a woman would visit me once or twice a week to work through a series of exercises with me that were supposed to help strengthen my legs and my back. I would be pulled out of class and go to the nurses room where a mat would be laid out for me.

The physiotherapist, a wonderful woman with short curly brown hair and a nice smile, would get me to take off my shoes and socks and lie down on the mat. She would take one foot in her hand and stretch it, lifting the leg into the air and pressing down on the foot.

“This will stretch out your muscles,” she would say.

“It hurts.”

“Life hurts, Jamie.” she said.

She would make the leg fold in on itself, as if I were pulling my knees up to my chest and then repeat the same pushing and pulling exercise with the other leg.

“Have you been doing your exercises at home?” she would ask.

“Yes,” I said, knowing this was a lie. My father did not like anything that showed weakness. I was forbidden to do my exercises at home. My father thought having a cripple for a son was a weakness and an insult to his pride.

She would make me do ab crunches. I was able to do these with few problem. I could not do sit ups and still can’t. I’m not able to get my muscles to cooperate with me, I couldn’t get them to do what I wanted to do.

She would make me do push ups too, to help strengthen my upper body. I couldn’t do normal push ups and instead pushed myself up with my arms from the knee up. My legs would not support me if I tried to do regular sit ups.

After each of these sessions, I would be so sore I could barely walk. I would shuffle back to class, legs and arms screaming at me for putting them through such torture.

Walking through the hallways, the other children would stare at me, my difficulty walking. I would look at the floor, ignoring their stares.

I would pretend that they were jealous of me, wanted to be me. In reality, I think they were frightened of me because I was different.

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Elastic Legs

I think my legs are made of elastics.

Last night I stood at the bathroom sink, brushing my teeth. My legs felt as if someone were pulling my muscles taunt, stretching them to their full length. I had to keep moving from one foot to the other, knowing that if I didn’t, my balance would give out.

I felt the tightness of them all the way up the back of my legs, could feel the front of my legs throbbing softly as I tried to fight an ever lasting battle with my body.

I had an image of someone plucking a string inside my leg, causing everything else to vibrate and hum. I wonder if the spasms are my bodily music, it’s own symphony that plays on whether I want it to or not.

In bed, I stretch out my legs, feeling my calves throb and harden, becoming the elephant legs that I dislike so much. I’m not able to find a comfortable position and the pain, soft and throbbing along my body like a lovers touch, sends me into sleep.

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A Hurtful Lover

I feel like I am wearing someone elses feet. Today it has been a chore to walk, to take things one step at a time. I haven’t had a day like this in some time, where I have to remove myself from my body, almost as if I am floating alongside it.

My feet feel jelly like, filled with water. They are heavy and it’s all I can do to will them to move. Maybe body parts, like the brain, can be stubborn? I wonder if I prick the soles of my feet with a pin if water would pour out?

Walking has always been a chore for me, a daily exercise in frustration. I have to be careful how much weight I put on them, how much I let them carry me along. Sometimes, if I’m not careful, if I’m not paying attention when I walk, they will turn into face each other as if in greeting.

I know it’s a negative image to look at this twin inside me like an infection. It’s not a disease, nothing like that. More like a parasite that needs me, that requires that I live and breathe for its own survival. I roll my head in hopes that the muscles in my shoulders and neck will loosen and am rewarded with a flash of pain that flies up my neck.

I touch the skin there and it is hard and taunt; the muscle underneath responds to my touch by spasming again, by pressing against my skin.

Maybe I should look at this twin, this other me, like a lover that likes pain instead of a gentle touch? One that is in to domination, controlling my body and my movements so that I move to it’s will?

It’s certainly a better image than an infection.

Besides, infections go away. I was made this way.

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Fingerpainting

Today I am not able to feel my fingers.

My shoulders have been spasming all day and I can feel the muscles forming themselves into something resembling a sailors knot or a slip knot that will come undone when it is ready.

My right hand feels numb as the spasms move themselves down my arm; maybe there wasn’t enough room for them in my shoulders; maybe the spasms are like an infection that moves inside of me, targeting a different place each day?

I move my fingers along the table in front of me, slowly as if I were caressing it. I can feel tingles and needles again, those hateful needles that haunt me.

I know my fingers are there because I can move them, I can see them. I move them in front of my face, marveling at the face that I can’t feel them. They are like ghost fingers, someone elses fingers and I wonder if I can make them do things that I normally wouldn’t.

I feel like my fingers have been dipped in fingerpaint, perhaps blue as it’s a nice colour, that is numbing and dulling the sensatinos I would normally be feeling.

I flex my hands and wonder who they belong to.

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Bravery Most Humble

One of my friends told me that I was very brave to write about what I was going through.

I don’t think there’s anything brave about it, really. I just believe that it’s theraputic, that it’s a release.

That maybe if I write enough about what lives inside my body with me, sharing the space of my shell and my skin, that it will make it easier to accept.

I am reminded of You are Loved by Josh Groban. There is a line in the song that says “Don’t give up, it’s just the way of the world.” For some reason, this gives me strength. Maybe my world, my space, will always be this way?

From silence, I don’t gain anything. If I stay silent, I won’t be able to free myself of this twin inside of me. I don’t want to keep it a secret any longer, hiding behind a happy facade.

I want to be truly, really happy and I wonder if this is a step in the right direction. I have been strong enough to deal with what I was given.

Maybe now it’s time I learn to accept it?

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Elephant Walking

I think that my Cerebral Palsy affects my self esteem.

Certainly, when I look in the mirror, I don’t see the person everyoen else sees. My husband tells me I’m attractive and that’s all fine and dandy. But I wonder why I don’t see what he does?

I used to think it had a lot to do with the Tragic Artists Clause that a lot of writers subscribe to, but I don’t think that’s it. I don’t think that’s it at all. I’m a happy person, I’m content with life, I just don’t like myself very much. Or should I say I don’t like the shell I live in.

Years ago, in highschool, I had the chance to play The Elephant Man in the play of the same name. The part called for the actor playing the role to either bend his body or walk improperly in order to emphasize the pain he was in.

I didn’t have to pretend.

It was the first time I had felt at home in my body, the first time where my body lent itself to convienience. My body, twisted as it is, matched and mirrored The Elephant Man. I walk with weights in my feet, it seems, that empathize with that man.

The only difference is I can go out in public where as he had to hide.

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Marathon Running

I dreamt I was whole again last night.

I was able to walk without pain and without losing my balance. The dream was so real that it seemed like real life. I remember that, in the dream, I ran a marathon. The pavement was hot under my feet, the pavement stained my feet black.

The fact that I was running in a marathon should have been clue number one that it was a dream. The second clue should have been that I was running it barefoot.

When I woke this morning, it felt as if I had indeed run a marathon. I stretched my legs and was rewarded instantly with sharp muscle spasms that shot up my legs. The muscles tensed so quickly and painfully that I could do nothing but lie there for a moment, thinking of my dream to help get me past the pain.

This doesn’t happen too often, this instantanious spasming, but when it does I think it is the worst of the pain I have to go through. It’s so painful I have no choice but to let it pass.

I count again, this time getting to fifteen before I feel like I can breathe again. The pain doesn’t go away so easily this time. It stays with me, like a family member over staying their welcome and I massage my legs to get them working again.

At the bus stop this morning a woman asked if I was okay. I replied that yes, I was.

“You look like you’re limping.” she says to me.

“I suppose I am.” I reply. I can’t wait for the warmer weather when they put back the benches. I would give anything to sit. But even sitting provides little relief.

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A Moment of Quiet

Last night, I was able to get comfortable for the first time in a long time.

I had ten blissful moments of ease. I was stretched out, reading a good book, and my muscles weren’t talking to me, they weren’t squaking underneath my skin. They were restful and quiet.

I didn’t notice the pain had stopped until I moved. I’ve become so used to having some sort of pain resounding within the walls of my body that to have no pain at all was a strange concept.

A concept unknown.

Then I moved; I put my feet down to go and get myself a glass of pop and felt my feet stab me with their viscious teeth. I’m paying for that lovely moment of quiet today too.

I can feel the muscles in my shoulders knotted, as if someone has tied them several times and then once more and now is slowly pulling on them, stretching them and occasionally twanging out a note on the cords.

It makes me wish I had paid more attention to that moment of quiet where there were no diamonds to be found in the caves of my body.

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Hidden Diamonds

Sitting here typing this, I can feel my joints crying out at me in protest for doing something as normal as sitting. Spasms are running down my legs and my buttocks, my lower back.

I remember to count. 1-2-3-4-5-6-7-8. It doesn’t seem to help. My feet are throbbing and even now I can feel the knots in my back moving underneath the skin.

It feel as if I have glass under the surface of my skin that bites and pinches when I move. When I was younger I thought that broken glass looked like diamonds; except these diamonds could make you bleed.

Sitting here, I can feel my calf muscles tightening and knotting together; I have weights on the back of my legs, weights that try to pull me down into the earth, a mass of skin on the ground.

Another hot jab pokes at me from my back, as if it wants to come through the front. I drink my coffee and wonder if it’s too early in the morning to take an asprin.

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Tightrope Pride

I woke up this morning unable to feel my legs.

I knew they were there, that they were still attached to my body. But I could not feel them. It felt as if I were having phantom pains, of legs that had been but had ceased to be.

I flexed my toes, felt them move; my legs felt like unexplored space between my waist and my feet, a deep canyond that I could not walk across.

I knew it was going to be one of those days.

I waited until the muscles unknotted themselves and I had regained some feeling. I swung them out of bed, tested my feet on the floor. I could stand, but my legs felt unreal, as if they weren’t there.

It was like wading through water, a soft coolness as they reaserted themselves, made themselves known.

I touched them to make sure they were still there, even though I could see them. I was walking that tightrope again, balancing between walking and not walking.

Sometimes I just want to fall off the tightrope and let my legs give out from underneath me. But Pride won’t let me do that.

Pride won’t let me do a lot of things.

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