Thirsty Thoughts

It’s odd, really.

Writing all this out has given me a better perspective of myself.

I got an email from one of my friends the other day after he read a couple posts from this blog; he said that he would never be able to put himself out into the world like I do.

That thought has stayed with me for a few days now.

I pictured myself from years gone by; a shy, quiet boy (believe me, it’s true), afraid of himself and everything around him. Especially what was inside him. I remember hiding it like a filthy secret, dirty laundry to be eaten or hidden at the bottom of a dark closet.

And I think of myself now, of how much I’ve grown. I wonder, as I have before, what my life would have been like if I hadn’t been born with a disability. If Cybill Palusen was not my constant companion.

I know that I am typing these words, these thirsty thoughts that drink from my blood, mostly for myself but also for others out there who live like I do with a disability.

Every post here is painful for me, but it is also a release.

By telling others, by writing down my thoughts, another small part of me is set free.

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Walking on Broken Glass

I feel as if the twin is littering the ground with shards of glass.

I can see him, visualize him, scattering pieces of glass around him as if they were flower petals. Each time I take a step, I can almost hear the crunch of glass underneath my feet.

Walking is a chore today. Cybill Paulsen wears the garb of the Elephant today; I don’t feel comfortable in my own body and I know he is trying to push me out.

My feet feel like they are on fire as I walk today, a pain that licks the bottoms of my feet like a lover. I can feel my Elephant Legs showing themselves, peeling away my skin until they are free and I am not.

The muscles are tightening and tightening and I can feel them rising up with each step.

The wind sounds like the Twin laughing.

All this makes me want to do is keep walking, just to spite him. Regardless of the pain, I must keep walking. Regardless of how much it hurts, I will keep walking.

I count in my head as I move through the day, a litany, a tattoo, a prayer:

One-Step-Two-Step-Three-Step-Four

Five-Step-Six-Step-Seven-Step-More

I pretend I am skipping and thumb my nose at the twin, even though I know he will be angry at me.

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Blissful Pain

Last night in bed my body was making it’s own music.

I lay there, feeling my legs throb to their own beat and my feet would respond. The pain would flare up in my feet like fire and, though painful, the music was blissful.

I started to count to the rhythm. 1–2–3–4—-

I could feel my muscles clenching and felt as if my legs would come off my body. They clenched and I could feel my muscles mold themselves to my leg bones, my feet.

It felt like the world was quivering and I was powerless to stop it.

I continued to count well into the night, thinking of other things: why is the sky blue? Do cows drink milk? Can pain be beneficial?

All the while, the twin was laughing at me.

Bastard.

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Double Life

Sometimes I feel like I’m like I’m living a double life.

 It’s as if I have a secret inside of me. Because I will not let it out, it causes havoc inside my body.

I am not actually very open about my disability. The main reason for this is the reaction I get from most people. The moment I tell them I have Cerebral Palsy, they begin to treat me differently, as if I was fragile or an endangered species.

It’s happened so many times before. I watch their faces as realization comes after my words and then the light in their eyes becomes guarded, unsure. Then their words are kinder to me and they speak in a softer tone, as if I am old and feeble

I’m not really sure why this is. They may think they are doing me a kindness, but really it is just ostracising me all the more.

I sometimes feel it would be better if I put my head in the sand like an ostrich and let the world pass me by in a series of vibrations and tectonic plates.

But then I would miss everything that is moving around me. And dirt would be so horribly boring after a while.

So I guard my secret until the next time it works itself free.

And someone else begins to treat me differently even though we’re the same.

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Body Quake

As I lay in bed last night, I wondered if I was feeling an earth quake.

It felt like the ground was shaking underneath me. My shoulders and my back vibrated, my legs felt as if they were shaking and my arms felt like they were jelly.

When the sensation passed, I lay there for a moment before I realized that my husband had not moved. It had not been an earth quake; it had been my muscles. They had been shaking and quaking and didn’t need the Earth to quirk and shake to move of their own accord. When the body quake started again, I rode it out, trying to feel what I could, to embrace it instead of stiffening myself against it.

To fight it would bring more pain when it was finished.

So I chose to ride it through the second time and the third time. I could feel my muscles shaking into the mattress. I have never felt anything like before; the muscle spasms have always been centralized. One area at a time. Never before has everything shaken at once.

I am reminded of the great SanFansisco Earthquake, and the cracks that ran through the streets afterwards; great open spaces where streets were ripped apart.

I stop to wonder if now, after the body quake, there are cracks on the inside of me.

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Wheel Chair Dreaming

I dreamt I was in a wheel chair last night.

It was a sleek red metal that shone under the lights. Darkness was around me and I couldn’t see, but I could hear.

I tried pushing forward with my hands along the wheels, tried to move the contraption that held me in it’s arms.

I was jostled from side to side, moved, pushed, kicked.

Finally, someone tipped me out of the wheel chair and I landed hard on the ground. I know I made a sound, a soft sound of dismay and felt people walking on my hands. I could not feel them walking on my legs, though I knew they were.

When I awoke this morning, my legs were a mass of knotted muscle and my first thought upon waking was:

What if I could not walk?

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The Giving of Courage

I twirl the phone cord around my finger. I’m daydreaming when my mother’s voice brings me back to the conversation.

           

“They’re going to have her diagnosed.” My mother says.

           

“Who?” I know it’s smarter to ask this than to admit I may not have been listening.

           

“Willow.” She says. “Have you not been listening? They’re taking Willow in to be looked at.”

           

“What do they think it is?” I ask.

           

“They’re thinking its Cerebral Palsy.” She says. “She has all the signs. Even Megan thinks that what it might be.”

           

I felt my gut clench at those words. My niece is just over a year old. “Are they sure?”

           

“She’s arching backwards like you did as a child,” she says. “She’s having trouble with her flexibility. We can’t know anything for sure yet, but it looks like she may have it.” She says. “What you have.”

           

“But Megan didn’t have any problems with the birth did she?” A thought pops into my head that maybe, just maybe, they’re wrong, that Willow won’t have to live with this.

           

“No, there were no problems, but that doesn’t mean anything.” My mother tells me. “You know this.”

           

“Let me know if you hear anything?” I ask.

           

“I will,” she says.

           

We promise to talk later in the week and I hang up the phone feeling worried and restless.  I stare at the phone for a moment, thinking of Willow and how her life is about to change. She is no longer just a baby girl with bright shining eyes. She is a baby girl who has Cerebral Palsy.

           

Through out the day, I keep thinking of what it was like for me; growing up without knowing anything of what lived inside me. I thought of trying to learn more about my disability in a family that never spoke of things that were different.

           

I thought of always being told I was different, of always being singled out. I can only hope that she will be strong. It will take courage.

If she doesn’t have enough, I will give her some of mine.

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Glass Slippers

I wonder if I have glass on the soles of my feet.

I look at them, run my hands along the bottom; my feet feel normal. They feel alright, the skin of my feet rough from walking and day to day life. I feel for the glass and the hidden diamonds that are there, that I KNOW are there, but they don’t show themselves.

For two days now, my leg muscles have been in revolt and my feet have now joined the brigade. It is as if they have signed a petition, voicing their displeasure at having to walk me from point A to point B. When I walk, pain flares up my legs and at the bottoms of my feet and I wonder, vaguely, if I am wearing glass slippers. Perhaps the slippers have shards to dig into my feet, giving me better traction?

Whatever the reason for the pain, I keep walking. I try not to let it bother me, this cache of diamonds inside my skin, this twin that resides just below the surface of me.

I wonder why Cinderella thought glass slippers to be beautiful when, for me, they are quite painful.

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Thinking a Tune

Sharp pains are climbing up my legs like vines.

I can’t lift my feet properly today, it seems. Every time I go to take a step, I trip over my own feet. I try to remember what the therapist used to tell me (picture it, Jamie: Heel, toe, heel, toe) and feel like a drag queen contestant learning to walk in high heeled shoes.

It does no good. I keep tripping. I can feel the eyes of a co-worker looking at me as she walks behind me. I pay her no mind and keep walking, my right foot twisting on me. I stumble forward a bit and ignore it, I keep walking.

I feel like everyone is looking at my feet today, but I know that’s mostly my imagination. Walking back to my desk, I trip again, dress shoes scuffing against the thin gray carpet.

I can’t lift my feet properly, no matter how much I try today. If I force my feet to cooporate, my legs up the discomfort up a notch. The vines are knotting the muscles together, tightening them and even sitting, I know the Elephant Man is back, his Elephant Legs straining against the skin that holds them.

I let a song run through my head (today it is “I can see clearly now, the rain is gone. I can see all obstacles in my way, gone are the dark clouds that had me down…it’s going to be a bright, bright, bright sun shiny day…”) to take my focus away from the jabs that feel like hot kisses on my legs.

I get so tired of counting sometimes.  

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Embarassing City

Today, while shopping, I had to sit for a moment.

I had just finished grocery shopping and went to leave the store when I looked at the long flight of stairs that I had to climb up to get out. Normally, people don’t fear stairs too much. But to me, they are an exercises in pain.

My muscles don’t like being forced to carry me up steep steps. They’d much rather I stay firmly on the ground. I have enough trouble walking; I must be crazy to climb stairs. But climb I must. I’ve never been one to turn down a challenge. Seeing that I face challenges of every sort, each and every day, I’m not bothered by this.

I hold on to my bags of groceries, a few bags in each hand.  I know I’ll need the bags to balance me as I am momentarily vulnerable to my muscles while climbing. I put one foot in front of the other, one step at a time as it were, forcing my legs to work with the rest of my body. I’m not sweating when I get to the top but I’m sore.

I walk outside and feel sharp, jabbing pains in my feet and calves. Elephant Legs have come to bless me, gracing my calves with their swollen presence. I take small, shuffling steps to a concrete block that used to house a garden and I sit, knowing that even as I do so, the muscles will knot together.

But I also know I can’t keep walking; it hurts too much. I begin to count.

1-2-3-4-5-6-7-8-9-10-11….

 I know that I’ve been sitting there for some time, breathing deeply. And not once has someone stopped to see if I was okay. Not that I would have wanted that; how would I explain what was wrong? No, sometimes it’s best to be left alone.

Sometimes I’m thankful that I live in a busy city where people are living too quickly to notice anyone else around them. It saves me from embarassing myself.

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