A Magnet of Hope

Two steps at a Time coverI wrote this for the Reboot Your Life anthology for Chicken Soup for the Soul.

They didn’t select it, but that means that I can now share it with all of you. I’ve been sitting on it since January!

Enjoy!

 

I was  lost inside of myself. I didn’t know who I was anymore.

I had recently been diagnosed with Multiple Sclerosis after months of trying to figure out what was wrong with me. For months I had been unwell, but it was a magnet that my mother had given me that brought me back to myself.

In January, I was misdiagnosed with Labyrinthitis. I had fallen down the back steps of my apartment building the week before. The fall was jarring and I was bruised. The doctor thought the Labyrinthitis was caused by this; its a fracture that affects the inner ear. It can be caused by head trauma. It causes dizziness, vertigo, nausea. He was wrong, though. It was much more than that.

I just woke up with it. I went to sleep on December 31st 2012 and I was fine, I woke up on January 1st 2013 and it was as if I was in someone else’s body. I could barely stand and the whole world was spinning around me. After sleeping again for a few hours, I woke and I was still the same. I knew that something was wrong.

I got myself to the doctors and could barely hear him when he told  me that it would last anywhere from two to four weeks. Then the Labyrinthitis would go away on it’s own.

I couldn’t go to work and I wasn’t able to watch television or read. I couldn’t write and there were days I could barely walk or stand. Other days where I could hardly see. I listened to audio books when I wasn’t asleep. I was essentially bed ridden.

Somehow, I pulled myself up. I got better enough to go back to work, to get back in the world. It had been three weeks.  Three weeks of being barely able to walk, of sleeping all the time, of not being able to do simple things. Three weeks of being lost in my own body.

When I went back out into the world, I did so with the aid of a cane. The left my face was frozen, even my taste buds and I was deaf in my left ear. I thought I’d had a stroke and just didn’t know it. I fought and willed myself to get better; or better than I was. It wasn’t an easy process.

When I stated getting better, I tried to prove that I was okay, that I was fine-but I knew I wasn’t the same person, I wasn’t the same anymore. My face unfroze little by little and I waited for the four weeks to be up, for this temporary sentence to be over. Then four weeks stretched into five weeks, then two months.

I wasn’t any better though. Now it had been almost three months. Each day was a struggle, Then I lost the ability to write. I’ve written all my life and that was taking away my hands. Then I lost the ability to speak properly. I could hear the words in my head, but I could only say three of five of them to get my point across.

That’s when my mother stepped in. I left work and went to the emergency room. She stayed with me for the whole six hour stay. I was seen by a neurologist and booked for a battery of tests. It was April when I found out what had been wrong with me all year.

When the doctors told me I had Multiple Sclerosis, I thought: Thank goodness, it has a name; now I knew what it was and I thought I was okay with everything at first. I was holding up-but eventually, I got too  lost in thoughts of: what would happens now? What is my life going to be like from now on?

By the beginning of May, I’d withdrawn from everything and everyone I knew. I went to work, but I couldn’t do what I used to be perfectly capable of doing every day. I came home to my cat and held her while I went further and deeper into myself. I was consumed by what my life had become. My mother would call it brooding-apparently I’ve been a champion brooder ever since I was a small child. It wasn’t brooding, though. I was lost. I thought long and hard about taking my own life.

In June, I was making a passable attempt at cleaning when I saw it. A few years ago, my mother had given me a magnet. It was a small circular piece of glass and someone had put a saying inside of it. It had a bright yellow background and six simple words: my life is up to me.

Just six simple words and they were like an epiphany. It seemed so simple: I could sit and wallow and wonder what my life would be like now, or I could get busy living it. I could bemoan the fact that I got Multiple Sclerosis or I could accept it and what was to come, no matter what it was.

I knew that’s what had to be done and that I was strong enough to do it. That yellow magnet from my mother was like a beacon in the darkness of the Labyrinth and into the light.

By the time I got my official diagnosis in August, I was ready, come what may. I knew that my life as it was had changed. It would now be a life filled with difficulties and hardships, but it was my life to live.

All I had to do was get out there and live it.

Posted in Depression, The Past | Leave a comment

What I Meant To Say and What Came Out Instead

Two steps at a Time cover I am often reminded that my body is not my own.

This morning, I went out and about. I got myself breakfast. I had difficulty ordering. What I meant to say was “I’ll have the classic breakfast please.”

What came out instead as “I’ll have eggs and eggs please.”

Hmmm, I thought. That’s not quite right. I had to enunciate slowly what I wanted and the waitress still didn’t understand me.

I tried again: “I’ll have the classic breakfast please.”

What came out instead was “I don’t want cheese with my breakfast.”

I blushed as she looked at my with something akin to pity. Finally, I resorted to pointing to the menu. I was able to get the words “Scrambled, bacon, rye” out with no problems however.

Afterwards, I went to the drug store to get some things I needed.

I had $30 of points saved up, so gathered up $30 of purchases happy that I would be getting them for free. When I got to the cash however, she told me I had $25 before taxes.

What I mean to say was “Can’t I use only $20 of them?”

What came out instead was: “The points aren’t used automatically?”

She shook her head not understanding my question. I tried again: “My points, they are used at the same time?”

She looked at me as if I were mentally deficient. She spoke slowly to me asking: “Do you want me to use some of the points?”

I nodded, saving only $5 instead of the $30 I was supposed to save.

I’ve been having a few problems with speech as of late. The words aren’t coming out fast enough leaving pauses in the conversation or they come out all wrong, not at all what I meant them to be. There have been a few conversations with friends, family and co-workers where the words aren’t there when they’re supposed to be.

I’m currently reading The Fault in our Stars and came across a line that hit home for me. Hazel is talking about how she looks sick, whereas Augustus doesn’t appear ill. She says: “The physical evidence of disease separates you from other people.”

I couldn’t agree more. For most of last year, I walked with a cane. I couldn’t get over how nice people were being, how kind they were. I would occasionally catch people looking, though, their eyes full of pity. I can’t express what a relief it was to walk without the cane and be treated rudely like a normal person.

Now, without the cane, some of my symptoms startle people. They look at me, take me in, and I appear to be all right and I am. Then the speech problem start or the balance issues and they’re caught off guard. They aren’t sure what to do or how to respond. The truth is, neither am I some days.

Thankfully, the speech problems will go away eventually, replaced by something else. But here’s the thing: I may be having speech problems, but I haven’t lost my voice. As long as I can type, my words as I mean to say them aren’t lost to me.

And that’s pretty freaking awesome.

Posted in Speech, Talking | Leave a comment

Symptom Phobia

Two steps at a Time coverI have to remind myself that not everything is a symptom.

Last night, I went to bed at 9:30pm like I always do. Usually, thanks to the pills I’m on, I fall asleep rather easily. I may have to get up several times during the night but falling back to sleep is usually not an issue. I’ve never had insomnia before.

However, last night, I was awake until 1am. The last time I looked at the clock, it was 12:57am. Instead of reading a book until sleep claimed me, I went online and did something I normally don’t do.

I Googled symptoms of Multiple Sclerosis.

I’m still coming to terms with my new body and have been trying to learn everything I can. I’ve changed my diet drastically, have taken on an exercise program; I’ve started living the healthy life I should have years ago.

However, because I’m still coming to terms with what my body is like, I try to read everything I can. I have MS For Dummies on my Kindle and I’m constantly referring to it. I do realise, however belatedly, that googling symptoms at 11 o’clock at night is not the same thing.

The list of symptoms with MS is wide ranging. Here’s a list of them borrowed from the MS Society:

http://www.nationalmssociety.org/Symptoms-Diagnosis/MS-Symptoms

I’ve suffered from, or am suffering with, almost all of them on the list. However, one that’s not listed is the potential to develop insomnia. I was convinced that my lack of ability to sleep was the development of another symptom.

I read this last night online and in MS for Dummies. It should also be noted that insomnia is a indication of depression and I’m not depressed now. That was last year. One night of insomnia does not a symptom make.

I’ve been so conscious of the potential of developing other symptoms that I’m seeing them around every corner, in every spasm or speech problem. I’m so afraid of developing more that I convince myself that I’ve developed something new and am on my way to a possible relapse.

What I have to remember is this: every day is a gift, filled with many joys. Even the smallest thing is a joy. The symptoms I do have, while inconvenient, do not stop me from living. Only I can do that.

I’ve only been diagnosed with MS for a short time. It hit hard in January, but the actual diagnosis only came on August 21st 2013, the day before my birthday. Though it feels like a lifetime ago, a different “me” ago,  it hasn’t even been a year. When I started to get better, in May of last year, I made a choice. I could hole up and hide, or I could live. I chose to live.

I’m still learning about myself and my new body. I’m still learning about the disease I carry with me. I’m still learning.

I need to stop focusing on what might happen. New symptoms will come and go, that’s the nature of Relapse and Remitting. I need to stop looking for the boogeyman around each corner of my brain and focus on living my life the only way I know how:

Two steps at a time.

Posted in Insomnia, Symptoms | Leave a comment

Pissed (Pun Intended)

Two steps at a Time coverThis morning, I had an appointment with a urologist.

It’s not often talked about, but a ton of people with MS have bladder problems. I haven’t talked a lot about mine here, only once before. So I hope you’ll pardon me if I talk about them again.

I have a lot of issues as a result of the MS, but one of the most annoying for me, aside from the memory issues, speech problems, lack of energy, intense fatigue, body pain, spasms, tremors, temporary problems with eye sight,  etc, is the bladder problems.

I’ve always had an over active bladder. However, now it’s very active with an added hitch: sometimes, even though I know I have to urinate, I am unable to. Other times when I feel like I don’t have to go, I have to. As you can imagine, this leads to a lot of discomfort and some difficulties.

I was told by my MS doctor that a personal catheter had to be used. My MS nurse told me that there was medication I could take for it. Though I’m loathe to take another medication on top of the ones I already take, by this point, I was willing.

I can’t remember the last time I slept through a whole night. Sometimes when I get up in the middle of the night, urinating can take up to half an hour. I’ll go once and then have to go again soon after, so I just stay on the toilet. This leads to a disrupted sleep pattern and brain and body fatigue the next day. I take Dex4 glucose tablets for that.

Thus, I was happy to go to my appointment with the urologist. I figured I would get my results from the sonogram and be prescribed a treatment and that would be that. However, that wasn’t how things went down.

The urologist was super awesome and a pleasure to speak with. He informed me of a few things:

– People with Cerebral Palsy have an over active bladder. I never knew this, but it would explain why I had to pee so much more than the average person. Why did I never know this?

– The Cerebral Palsy has it’s own bladder issues, but so does the Multiple Sclerosis. So in effect, the MS is making the bladder issues worse.

– The sonogram was done incorrectly. The start results weren’t recorded so it gave the urologist no baseline. On top of that, it’s really only indicative of having a really full bladder.

– Which means that the sonogram is, essentially, useless.

I was pissed, really quite upset. It wasn’t the urologist’s fault, but it was the most uncomfortable procedures I’ve been through. The MRI’s are mildly claustrophobic, I didn’t feel the Lumbar Puncture (otherwise known as a Spinal Tap); thank goodness for Novocaine, but the sonogram? Torture. That and highly embarrassing when I pissed myself.

To find out that the whole ordeal could have been avoided if I had just been referred to a urologist? Maddening. However, medical practices are getting better and my urologist is awesome.

I have two more appointments with him. The fist is the actual testing to determine which kind of treatment will work for me. It involves a catheter. I’ve never had one done and am not looking forward to it, but if it’s part of the road that will help me get better, I’ll welcome it. Then I have the follow up appointment when I find out what treatment I can pursue.

The only piece of bad news? I have to wait until September. That means I’ll have my one year follow up appointment with the MS Clinic and two appointments with the urologist to look forward to in one month. You can’t say I don’t know how to have fun. I just wish I didn’t have to wait so long for the appointments with the urologist. It means having to deal with bladder issues for longer than I was hoping to.

There is one good side to all this: It’s another two steps forward on reclaiming my body and living in as healthy a way as possible.

And that is something to be truly thankful for.

Posted in Bladder problems, Urologist | 1 Comment

Pushing Past the Boundary

Two steps at a Time coverI took another step on my path to wellness this week.

On Tuesday, I met with a personal fitness instructor. She designed a work out that I could do that kept my balance issues in mind. She took me through the exercises and I was so thrilled to be doing them. I was exercising, something I’ve wanted to be able to do for months! Better yet, she designed the exercises so I could do them from the comfort of my own home.

The exercises are designed to strengthen my more, my balance, my legs and arms. I was surprised by how tired I was just going through what I thought were fairly simple exercises. I used to do a workout that included 100 push ups, 100 ab crunches, 100 sit ups and running for a half hour. I couldn’t believe that after an hour of going through five simple exercises left me exhausted.

My instructor asked me what my goals were. I could think of only two: next year for the MS Walk, I want to be able to walk five kilometres. I also want to walk heel to toe across the doctors office. Walking heel to toe may sound simple but it’s something I can’t do. At each of my appointments at the MS Clinic, I’m asked to try to walk heel to toe. I can’t manage one step. My balance is no good and I can’t stay upright. It sounds like such a simple thing to do, but to me it’s like climbing a mountain.

I noticed then that my left and right sides are different. The left side is where the MS hit and is strongest, the right side is where my CP is more evident. Each side presented different challenges in the exercises.

On Wednesday evening, I took myself through my new exercise routine. I manage it but it was had to do. It’s something to have an instructor take you through it but it’s different doing it on your own. I managed quite well and was very proud of myself.

That night in bed, I had a full body spasm.

It started, as most of the spasms do, in my legs. They throbbed with an intensity I haven’t felt before. The spasm was brief but it was like my legs were on fire. As they continued to burn, the spasm moved up to my back and arms.

My body was numb, it was on fire, it was like it was being jabbed with needles. As the spasm moved through me, I just lay there in my bed and waited for it to end, to stop, to cease. I just breathed and waited and hoped.

Eventually the spasm stopped after about twenty minutes and I slid into a restless sleep. Yesterday,  morning when I woke, I hurt all over. It hurt to walk, to move, to dress. Showering was a slow effort. The spasms stopped, but my legs were like two stone pillars. The muscles in the legs didn’t release or go down until last night.

I don’t know if it was stress, my body just doing what it does or the workout that caused my full body spasm. I have no idea. What I do know is that the workout routine is all about making my body stronger, about pushing past some of the boundaries and doing what I need to despite the pain that my body is in.

Tonight, I took myself through my workout routine again.

Every step I take is a journey. There will be good days and bad ones but I know that I’m on the right path. I can’t let pain stop me. It may slow me down, I may be momentarily afraid but fear and pain pass eventually.

All I have to do is push past the pain barrier and live one moment and one step at a time. That’s all I can do; and that’s enough.

Posted in Balance, Muscles, Spasms | Leave a comment

Telling Stories in a Different Way

Two steps at a Time coverThis is a guest post that I wrote for when Talking to the Sky was released. Out of the three of them, it took me the longest to write.

It was posted at Alexandra Brown’s blog and I had the honour of being her first guest post. You can read the original post here:

http://www.alexandrabrown.co.uk/2014/03/jamieson/

 

When I fell ill last year, I was unable to do anything. I wasn’t allowed to read, to write, to watch television. Not that I would have been able to do that anyway. All I could do was sleep. Being unable to write or read nearly killed me. I lived for words in all their different forms.

After two weeks I was able to read again. The first book I read was Cupcakes at Carrington’s by Alexandra Brown. I wanted something light and fluffy to take me away. What I got instead was so much more than that.

Georgie has to deal with a lot more than your traditional chick lit heroine, but what touched me most were Georgie’s losing her mother from MS related illness. At the time, I read as an observer as my brother has MS. I instantly connected with Georgie’s pain and hoped she would be able to let it go.

Alexandra wrote about a topic that isn’t normally covered in chick lit. MS is certainly not  light and fluffy subject matter. However I wish that wasn’t so. The women in chick lit novels are still people and as such, they deal with all kinds of issues. They’re supposed to be real women living normal lives and not everything in life is fluffy and glorious.

Cupcakes at Carrington’s handles the topic of MS so beautifully that it touched me as a reader and as someone who had a brother with the disease. When they finally figured out what was wrong with me and diagnosed me with relapse and remitting Multiple Sclerosis, I read Cupcakes at Carrington’s again and then a third time, this time with knowledge of what I had.

Alexandra has written a series that goes beyond chick lit. It is within the same genre but by telling her stories in a different way, she’s given chick lit a face lift, has given it heart. She’s given it soul.

I was thrilled to be reading again, but there was a block with my writing. I struggled for weeks with the brain fog, the numbness in my head due to the MS. The stories were still there, I just had to find a different way to tell them.

I had once seen a documentary about Marina Abramovic’s performance piece The Artist is Present. In the piece, she sits as herself and says nothing. All she does do is be completely present for every person that sits across from her.

At first, I wondered how this could be considered art but then grew to see how each person was moved by Marina’s presence and she by them. All this was done without saying a word.

All I wanted to do was write. I could only write a few words at first and could stitch those words together into a poem. However, if I was going to write poems, I wanted to do it a bit differently.

You see, first and foremost, I’m a story teller. I tell tales, spin yarns, create myths. For that, there can’t be just my voice. I find poems are a deeply private piece of that writers soul. They are reaching into themselves and pulling up something tangible.

There is a piece of me in everything I write. I’m sure many writers can agree with me on this. There are characters that I’ve created that look like me, some that have my traits, my sense of humour. I usually tell someone that the best way to get to know me is to read something I’ve written. I’m all through out it my stories.

Poems are more personal, however, like a memoir. The writer is laying bare a moment in time, something that touched them. I wanted to tell stories with my poems. The poems contained in Talking to the Sky are very personal and they are an exploration of strength as I went on a journey to find myself again. However, they aren’t just my voice. Like any good story, there are other characters.

I ended up writing down random conversations I had with people or been part of. Other poems expressed conversations I’d wanted to have and things that remained left unsaid. Some were based in fancy and flight. All the poems had one thing in common: they all involved talking in some way.

By writing the poems in this way, I was able to look deeper than just a random moment, I could look at myself, at what I needed to learn. I’m still learning about myself with every poem and every word I put to paper. I’m still writing my own story and I have no idea how it will end but that’s half the fun isn’t it? I can’t wait to see what the next chapter will bring.

Posted in Talking to the Sky | Leave a comment

Writing Past the Wall

Two steps at a Time coverThe following is a guest post I wrote for author Marie Bilodeau’s blog. She wanted to know about my experiences with writers blog in relation to my Multiple Sclerosis. She’s been kind enough to let me repost it but you can see the original post here:

http://mariebilodeau.blogspot.ca/2014/02/guest-post-writing-past-wall.html

 

I’ve never had a problem with writer’s block.

Sure, I had the odd time when a story or a character was being stubborn, but I’ve always been able to write. I’ve written over tons of books and I was always writing something. There was always  a story to tell, always words pouring out.

In January 2013, that all changed. I got sick with what was eventually diagnosed as Multiple Sclerosis. I didn’t write anything for almost a month. When I started to get better, I found I couldn’t write.

I would sit at the computer and stare at it. When I put my fingers to the keyboard, I couldn’t get my fingers to hit the right keys. I was stuck. It was as if there was a wall in front of me that I couldn’t see through.

It was the biggest case of writers block that I’d ever experienced. There were all these words inside my head, all these stories waiting to be told. No mater how hard I tried to force them out, they wouldn’t come and I couldn’t get past the wall that was my head.

I’m a writer. Writing is what I do, the air I breathe, the elixir of life. I needed to find a way to write again, I had to.

I decided to try my hand at poetry. I thought that if artists could do performance art that was silent, perhaps I could write something that would use very few words and still hold meaning for me.

I could only type a handful of words at a time – they were all that was allowed past the wall. I figured that I could string enough of them together to make a poem. I could tell stories again; maybe not the types of stories I used to tell, but I would be writing something. That was enough.

It was slow going at first. The first poem I wrote took me a few days to write, but I got it written. I can’t describe what it was like to write that first poem except that it gave me a joy I had never experienced. I was writing again. It didn’t matter that it was only a handful of words at a time. I was writing and that was enough.

It took a while, but as I continued writing my poems, my typing became more precise. I was able to write whole poems instead of a handful of words. They may have taken hours instead of minutes to write, but the words meant more to me; though there were few of them compared to what I normally wrote, they had more depth.

The poems were made from the pieces of the wall, pebbles and stones holding consonants and vowels. As I continued to write poetry, the stones were all used up and the wall came down. I had found a way past the wall. I’ve never been able to regain the speed I used to write at, but the writer’s block had lifted, the wall was gone.

By April, I was able to start working on the novel that I had been working on before the MS hit. I continued with another novel and am now working on another. However, more and more, I’m turning to writing poetry.

They gave me a voice when I didn’t have one and for that I will be eternally grateful.

Posted in Talking to the Sky | Leave a comment

Memories on the Wires

Two steps at a Time coverThe following is a guest post I wrote for author Lauriee Stewarts blog.

I wrote about social media and how it’s helped preserve my memory

to promote Talking to the Sky when it was released. You can read the original post here:

http://morrighanfilms.wordpress.com/2014/02/19/guest-blogger-jamieson-wolf/

 

I was out at dinner this evening and a woman saw me taking a picture of my dinner with my smart phone.

“Oh, are you a food blogger?”

“No, I’m a writer. I’m just putting the picture on Facebook.”

A woman across the table leaned forward. “Why are you putting a picture of your dinner on Facebook?”

“So I don’t forget anything.”

That’s usually the answer I give to why I use social media so much. Social media serves a purpose: it helps you connect, helps writers and artist promote ourselves (yay us!) and it helps us stay in touch with our loved ones.

I use it for one other important purpose: I use it to remember.

I use Facebook a ridiculous amount; I’m also hooked up to Twitter, Tumblr, WordPress and others. I post poems, articles, novels, short stories. I post pictures of my life from that random moment, something I’m able to capture.

All of it is lived in the moment.

I have trouble remembering things. My thoughts sometimes get hard to hold on to, as if they are made from smoke. I’ve forgotten a lot of what I used to know or what I’ve just taken in.

It used to be I could recall whole plots of books I’ve read and loved. Now I can’t remember what the last book I read was. When I want to write a book review, I usually have to read the book a second or third time.

What I put out on social media are like pebbles, left along the roadside. Sometimes the pebbles go amiss: they get moved by the wind, scuffed by someone’s boots, carried in the beak of a bird. Some of the pebbles go missing.

Social media is a way for me to gather all of those stones somewhere, so I can find them again.  I think of each post, poem or word like a memory, preserved in electricity. They are like snapshots of a moment.

I was broken into earlier this year. One of the things that was taken was my laptop…and the memory key I left in it that day that contained all of my writing from my whole literary career. All my novels, my manuscripts, everything I’ve ever written.

I’ve since started backing up everything I write. That was a lesson I learned the hard way. When I went to the internet to gather the poems for Talking to the Sky, I was very thankful that I had put every poem I wrote last year up on the internet. They were all there, waiting for me.

The problem was that I didn’t remember writing a lot of them. When I put Talking to the Sky together, I was reading the majority of the poems for the first time; and I was the one that wrote them. I had forgotten them completely.

Never have I been so thankful to social media and the lives we live within the wires. It held on to piece of my voice and gave it back to me when I needed it.  For that, I will always be grateful. I was able to gather these snapshots and now I give them to you.

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Sorry, Cher. It was nothing personal…

Two steps at a timeI was supposed to go and see Cher and Cyndi Lauper in concert last night. I didn’t go and sold my ticket. Instead, I got the rest I needed to take part in The MS Walk.

When I purchased my ticket, I didn’t know about The MS Walk. When I found out about it from my friend Jayne, I immediately wanted to do it. So I signed up as a team captain, made a pledge and started a journey.

I thought I would be walking alone. I just wanted to see if I could do it. I hoped to raise the minimum amount of pledges ($125) and barely be able to walk the shortest walk of 3k. That didn’t matter to me, I just wanted to see if I could do it.  The thought of walking that far terrified me.

At that time, I had only been walking without my cane for less than a month. I really didn’t1k know if I could walk for three kilometres. I didn’t know how far that was, had no way to measure it. I started having a fear of the unknown: Whether my body would choose while I was walking to be uncooperative, of the fatigue would kick in.

In the end, I knew I would do the Walk no matter what happened and that whatever would come would come. Instead of giving into fear, I did what I could to get ready. I started taking twice daily walks with people at work. We would walk around a street or two at first, but then we would start walking around whole blocks, the walks taking up the whole fifteen minutes.

For the past two  months, I’ve been walking whenever possible. I’ve been pushing myself2k little by little to walk more. Last week, I even took the stairs instead of the elevator at work. That would have been unthinkable last year. Heck, it was only a few months ago that I had my hellish experience going down all those stairs in the fire drill.

I had even started adding up the amount of distance walked to and from work and on our break time works. The highest was 6.5k, but that was all though out a day.  I didn’t know if I could do 3k at once.

As the Walk approached, It was pointed out to me that the Cher concert was the night before the Walk. I knew there was no way that I could do both. I talk a lot on here about knowing my boundaries, my bodies limits, what it can do and what it can handle.

The concert would go until 2AM in the morning and then I had to get home. That would 3k2leave me physically unable to do the Walk the next day. That I had to make a decision.  I decided to sell my Cher ticket; The MS Walk meant more to me.

I had a whole team of friends, family and co-workers that had signed up to be part of my team called The Wolf Pack. I had come so far in getting better; and I really wanted to prove something to myself.

I’m sure Cher and Cyndi were fabulous, but doing the MS Walk meant so much more to me. There’s just something about the experience that filled me with such pride.  I wanted to prove to myself that I was strong enough to do it.

I have a few mantras that I repeat a lot lately, to myself and others. One of them is “You are stronger than you think you are.” I know I have certainly proved this to myself already. Despite the trials of last year, I’ve survived them and come through them a better person.

The first kilometre went; I couldn’t believe I had actually reached it. The second kilometre seemed to go on forever. I had to take a short breather, just a minute or two, then kept on going. The third kilometre was like the first. It seemed to end in no time. As I neared the end, with the finish line in sight, I was filled with a joy so bright, I had experienced it before.

I passed the finish line in 59 minutes and 37 seconds and together The Wolf Pack had raised $595 to help end MS. I did something I never though I could do and came through it in one piece with people who are my family, friends, co-workers. We all shared a moment that we will always remember.

Being able to do the MS Walk this year did prove that I was stronger than I thought I was. It filed me with more light than any concert from Cher would have (sorry Cher!) and that is awesome.

Posted in Cher, Cyndi Lauper, The MS Walk, Walking | Leave a comment

You Can Dance If You Want To

Two steps at a Time cover On Friday, I went out for the first time in what felt like a lifetime. In a way, it was as my life is now divided into BMS (Before MS) and AMS (After MS).

A group of us was going out after work and I actually wanted to go. We went to Le Petit Chicago, a Latin dance bar. We got there early and I even treated myself to a fancy Cosmo. I had no intentions of dancing however.

The Multiple Sclerosis and Cerebral Palsy play havoc with my body. Often, my movements aren’t my own. I always waned to take dance lessons as a child, but couldn’t due to the CP. I’ve gone to clubs to dance, but you don’t need to have any rhythm, you just have to move to the music.

I went to Le Petit Chicago with Julie and Alexandra. When they told me I would have to dance too, I shook my head. “I can’t dance.”

“Of course you can!” Julie said.

I shook my head. I didn’t know what my body would do on the dance floor, whether my movements would be my own or not, or whether my body would take over and do what it wanted to anyway.

Really, I was afraid I wouldn’t be able to do it. I was afraid to try.

Julie and Alexandra wouldn’t take no for an answer and dragged me up on to the dance 1620905_10153993591590702_400105831013585374_nfloor. They showed me the basic steps for a salsa. It seemed simple enough. I thought I could do it.

Alexandra led for the first little bit and I’m chagrined to say that I had a blast. Though my feet didn’t always move in the direction they were supposed to and my balance was off, but that didn’t matter.

What mattered was I was with people who loved me and I was conquering something. I was dancing even though I thought I couldn’t, even though I thought the art of dancing was lost to me. Sure, I wasn’t as graceful as Julie or Alexandra or anyone else in the bar, but I was dancing and grinning the entire time.

I ended up dancing for most of the night. I paid for it the next day with spasming muscles and soreness, but that didn’t matter. Every bit of pain was a reminder of what I’d accomplished and the fear I was able to banish.

I don’t know if Julie or Alex will ever know the full depth of the gift they gave me. They helped me see that I can do anything I want to do, no matter what the boundaries of my body are. They helped me see that anything was possible, no matter how far fetched.

I am eternally thankful for them and grateful they wouldn’t take no for an answer.

Posted in alcohol, Balance, Dancing | Leave a comment