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Recent Posts
- The Lessons I’ve Learned
- Boats of Many Colours
- The Light of Small Joys
- The Deity of the Waves – Thoughts on Chemo and the River Within
- This Is My Journey
- Pushing Through
- Happy Birthday Max Shadow!
- Bodily Able – A Reflection
- The Power of Forgetting
- Captain Maven and the Shadow Man: AVAILABLE NOW!
- The Many Ways of Mavenclad
- The Light Through the Trees
- Someone I Used to Know
- The Challenges I Overcome
- Relearning How to Live
- Captain Maven and the Shadow Man – Coming Soon!
- On the Shores of Acceptance
- The Maybe of Mavenclad
- Embracing the Changing Landscape
- A Star Upon the Waves
- Living My Best Life Two Steps at a Time
- One Day at A Time
- I’m On TV! Let’s Chat with Derick Fage
- Happy Birthday Little Yellow Magnet!
- On Becoming Aware
Category Archives: Symptoms
The Light of Small Joys
The thing is most of the time I feel okay. I can pretend that there is nothing wrong, that I’m totally fine and I don’t have anything to worry about…but then my mind reminds me of the fact that I’m … Continue reading
Posted in Cerebral Palsy, Depression, Fear, joy, Multiple Sclerosis, Symptoms
Tagged Cerebral Palsy, Chemo, falls, famil, friends, hot flashes, husband, joy, Mavenclad, Multiple Sclerosis, Small Joys, Symptoms
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The Challenges I Overcome
I was asked to give a talk to the people I work with to celebrate the International Day of Person’s with Disabilities. These are the notes that I wrote. I planned to read them out loud, but ended up just … Continue reading
Posted in Autoimmune Deficiency Disease, Challenges, Falling, fatigue, Lesions, self esteem, Small Victories, Spasms, Speech, Symptoms, Writing
Tagged Challenges, Depression, exercise, flat mountains, Grateful, international persons with disabilities day, Overcome, Painting, Small Joys, Talking, Typing, walking, Writing
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On the Shores of Acceptance
I feel like I’ve been waiting for a long time. In reality, it hasn’t been that long, not really. Time is no longer relative and it either speed up or slows down depending on the news you are waiting for. … Continue reading
Posted in Autoimmune Deficiency Disease, Covid-19, Mavenclad, MRI's, Neurologist Appointments, results, Side Effects, Symptoms
Tagged Mavenclad, MS, Multiple Sclerosis, Symptoms
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Stress and the Shadow Man
I know that stress is one of the worst things for people with multiple sclerosis. I’ve been experiencing a lot of it. It’s keeping me awake at night, so I’m having to take my prescribed sleeping pill more than usual. … Continue reading
The Stone Man Speaks
Multiple Sclerosis is a curious disease, just as Cerebral Palsy is a mysterious disability. Even after so many years of living with them, they always like to keep me guessing…mostly because I’m no longer sure which one does what. It … Continue reading
Posted in Falling, Spasms, Speech, Symptoms, Talking
Tagged Ami McKay, Cerebral Palsy, Cybil Paulsen, Jack Nicholson, Max Shadow, Multiple Sclerosis
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The Whispering of the Trees
I entered this in the CBC Non Fiction Prize. While I didn’t place in the long list, that’s all good as I can now share it with all of you. The world had fallen around me. The dark forest … Continue reading
Posted in Memoir, Muscles, self esteem, sex, intamcy, Symptoms
Tagged CBC Non Fiction Prize, Memoir
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I’m Alive For This Moment
On Wednesday last week, I had an appointment with my neurologist. This is a joy for me. My doctor is a delight and makes going to the hospital a joy. She’s always upbeat and I feel as if I’m meeting … Continue reading
Posted in Depression, Doctors, Falling, Fatique, Insomnia, MRI's, Symptoms
Tagged I'm Alive For This Moment, Medication, Neurologists, New Symptoms, Thankfulness
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Today Is A New Day
On December 30th, 2012, I woke up to find that my world as I knew it had changed. I woke not knowing how to move my body. It was no longer mine and I was no longer able to control … Continue reading
Posted in Balance, Brain Fog, Depression, Falling, Fatique, Spasms, Speech, Symptoms, Walking
Tagged A New Day, Celebration, Change, Divorce, Gratefulness, joy, Thankfulness
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Falling Through the Air
My left leg has been spasming for five days. It’s always in the same place, the thigh. The spams aren’t painful, but strong. They last for a few seconds, the longest has been close to thirty. Normally, my spasms come … Continue reading