Category Archives: Symptoms

The Light of Small Joys

The thing is most of the time I feel okay. I can pretend that there is nothing wrong, that I’m totally fine and I don’t have anything to worry about…but then my mind reminds me of the fact that I’m … Continue reading

Posted in Cerebral Palsy, Depression, Fear, joy, Multiple Sclerosis, Symptoms | Tagged , , , , , , , , , , , | Leave a comment

The Challenges I Overcome

I was asked to give a talk to the people I work with to celebrate the International Day of Person’s with Disabilities. These are the notes that I wrote. I planned to read them out loud, but ended up just … Continue reading

Posted in Autoimmune Deficiency Disease, Challenges, Falling, fatigue, Lesions, self esteem, Small Victories, Spasms, Speech, Symptoms, Writing | Tagged , , , , , , , , , , , , | Leave a comment

On the Shores of Acceptance

I feel like I’ve been waiting for a long time. In reality, it hasn’t been that long, not really. Time is no longer relative and it either speed up or slows down depending on the news you are waiting for. … Continue reading

Posted in Autoimmune Deficiency Disease, Covid-19, Mavenclad, MRI's, Neurologist Appointments, results, Side Effects, Symptoms | Tagged , , , | Leave a comment

Stress and the Shadow Man

I know that stress is one of the worst things for people with multiple sclerosis. I’ve been experiencing a lot of it. It’s keeping me awake at night, so I’m having to take my prescribed sleeping pill more than usual. … Continue reading

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The Stone Man Speaks

Multiple Sclerosis is a curious disease, just as Cerebral Palsy is a mysterious disability. Even after so many years of living with them, they always like to keep me guessing…mostly because I’m no longer sure which one does what. It … Continue reading

Posted in Falling, Spasms, Speech, Symptoms, Talking | Tagged , , , , , | Leave a comment

The Whispering of the Trees

I entered this in the CBC Non Fiction Prize. While I didn’t place in the long list, that’s all good as I can now share it with all of you.   The world had fallen around me. The dark forest … Continue reading

Posted in Memoir, Muscles, self esteem, sex, intamcy, Symptoms | Tagged , | Leave a comment

Listening to the Body is the Hardest Thing to Do

As much as I’m thankful for the multiple sclerosis and what it’s taught me, there are times that it makes me angry and pisses me off. There is so much that I try to do and, most days, I succeed. … Continue reading

Posted in Brain Fog, fatigue, Insomnia, Spasms, Symptoms | Tagged , , , | Leave a comment

I’m Alive For This Moment

On Wednesday last week, I had an appointment with my neurologist. This is a joy for me. My doctor is a delight and makes going to the hospital a joy. She’s always upbeat and I feel as if I’m meeting … Continue reading

Posted in Depression, Doctors, Falling, Fatique, Insomnia, MRI's, Symptoms | Tagged , , , , | 2 Comments

Today Is A New Day

On December 30th, 2012, I woke up to find that my world as I knew it had changed. I woke not knowing how to move my body. It was no longer mine and I was no longer able to control … Continue reading

Posted in Balance, Brain Fog, Depression, Falling, Fatique, Spasms, Speech, Symptoms, Walking | Tagged , , , , , , | Leave a comment

Falling Through the Air

My left leg has been spasming for five days. It’s always in the same place, the thigh. The spams aren’t painful, but strong. They last for a few seconds, the longest has been close to thirty. Normally, my spasms come … Continue reading

Posted in Balance, Falling, Spasms, Symptoms, Walking | Leave a comment