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Recent Posts
- In the Company of Elivra
- Thirteen Years
- Waiting for Max Shadow
- Learning to Like Myself – A Reflection
- The Labyrinth of Me
- Levels and Lymphocytes
- The Impossible Mountain
- The Able Body and the Mountain Within
- A Maven Clad In Raven’s Clothes
- The Cyclone That Life Can Be
- A Personal Victory!
- The Language of Smiles
- A Dance with the Waves
- A Journey of Ten Years
- The Lessons I’ve Learned
- Boats of Many Colours
- The Light of Small Joys
- The Deity of the Waves – Thoughts on Chemo and the River Within
- This Is My Journey
- Pushing Through
- Happy Birthday Max Shadow!
- Bodily Able – A Reflection
- The Power of Forgetting
- Captain Maven and the Shadow Man: AVAILABLE NOW!
- The Many Ways of Mavenclad
Tag Archives: Journey
In the Company of Elivra
I am always fascinated by the way that my body changes. Max Shadow has been active lately. For over a year, I’ve had trouble dressing myself. My leg muscles have been incredibly tight. I haven’t been able to raise my … Continue reading
Posted in Max Shadow
Tagged Elvira, family, Fampyra, Feet, health, help, hydrate, Journey, Leg pain, life, Medical System, Medication, meditation, mental-health, Mistress of the Dark, Multiple Sclerosis, Muscles, Neurologist, nurse, Pain, pain level, pharmacist, relax, truth, walking, Writing
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Thirteen Years
It’s been thirteen years since my life changed. I can pinpoint it to the very day. Part of me can’t believe that I’ve lived with multiple sclerosis for this long. The journey with this disease can’t possibly gone on for … Continue reading
Posted in Anniversary, Brain Fog, Canes, Cerebral Palsy, Challenges, Cybil Paulsen, Max Shadow, Multiple Sclerosis
Tagged botox, Cerebral Palsy, Change, Choice, Choose, Cure, Cybil Paulsen, health, Journey, Learning, life, love, Max Shadow, mental-health, Multiple Sclerosis, passage of time, positivity, reality, Spasms, Thirteen Years, Time, Tremors, Writing
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The Able Body and the Mountain Within
When my journey with multiple sclerosis first began, I couldn’t wait to walk without a cane. After being bedridden for over a month, I willed myself to walk again through sheer will and stubbornness. I knew at the time that … Continue reading
Posted in Balance, Canes, Challenges
Tagged Ableism, battle, Cane, Cerebral Palsy, Disability, exercise, health, hope, Internalized ableism, Journey, Mobility device, Multiple Sclerosis, Strength, walking, weakness
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A Maven Clad In Raven’s Clothes
A few years ago, I had an appointment with my neurologist. The results of my latest MRI had shown new lesions in my brain, meaning that the multiple sclerosis was progressing. It was odd looking at my brain. What had … Continue reading
Posted in Chemo, Mavenclad
Tagged Anger, Bloodwork, cancer, chronic-illness, Depression, health, Journey, Lack of Information, Lack of Support, Mavenclad, Medical results, Medical System, mental-health, MRI, Multiple Sclerosis, Neurofilament Light Chain, Neurologist, One Step, Round, Test, Treatment, Two Steps, Upset, Worry
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Two Steps at a Time 