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Recent Posts
- Thirteen Years
- Waiting for Max Shadow
- Learning to Like Myself – A Reflection
- The Labyrinth of Me
- Levels and Lymphocytes
- The Impossible Mountain
- The Able Body and the Mountain Within
- A Maven Clad In Raven’s Clothes
- The Cyclone That Life Can Be
- A Personal Victory!
- The Language of Smiles
- A Dance with the Waves
- A Journey of Ten Years
- The Lessons I’ve Learned
- Boats of Many Colours
- The Light of Small Joys
- The Deity of the Waves – Thoughts on Chemo and the River Within
- This Is My Journey
- Pushing Through
- Happy Birthday Max Shadow!
- Bodily Able – A Reflection
- The Power of Forgetting
- Captain Maven and the Shadow Man: AVAILABLE NOW!
- The Many Ways of Mavenclad
- The Light Through the Trees
Tag Archives: positivity
Thirteen Years
It’s been thirteen years since my life changed. I can pinpoint it to the very day. Part of me can’t believe that I’ve lived with multiple sclerosis for this long. The journey with this disease can’t possibly gone on for … Continue reading
Posted in Anniversary, Brain Fog, Canes, Cerebral Palsy, Challenges, Cybil Paulsen, Max Shadow, Multiple Sclerosis
Tagged botox, Cerebral Palsy, Change, Choice, Choose, Cure, Cybil Paulsen, health, Journey, Learning, life, love, Max Shadow, mental-health, Multiple Sclerosis, passage of time, positivity, reality, Spasms, Thirteen Years, Time, Tremors, Writing
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Waiting for Max Shadow
I spend a lot of my time waiting. I’m currently waiting for the lymphocytes in my blood to get to 0.8 before I can start my fourth and final round with Mavenclad. My immune system has been wiped away three … Continue reading
Posted in Cybil Paulsen, Depression, Max Shadow
Tagged Bloodwork, Breathe, Cerebral Palsy, Choose, Depression, faith, life, Live, love, Mavenclad, mental-health, Multiple Sclerosis, Pain, positivity, Recuperate, rest, results, Sigh, Spasms, Speech, Stop, Symptoms, Testing, Urination, Waiting, Writing
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From This Moment
I had my follow up appointment with my neurologist last week. We wen through the normal tests that we do, chatting up a storm, catching up on everything that is going on in my life, the trips my husband and … Continue reading
The Positivity of Time
I measure my life in terms of positivity. That might seem odd to some, but it’s just how I roll. I’m in pain all the time, but you wouldn’t know it. Either my legs are spasming or my back is … Continue reading
Two Steps at a Time 