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Recent Posts
- Still Pissed! – MS and the Bladder
- Disability Pride and Why It Matters
- In the Company of Elivra
- Thirteen Years
- Waiting for Max Shadow
- Learning to Like Myself – A Reflection
- The Labyrinth of Me
- Levels and Lymphocytes
- The Impossible Mountain
- The Able Body and the Mountain Within
- A Maven Clad In Raven’s Clothes
- The Cyclone That Life Can Be
- A Personal Victory!
- The Language of Smiles
- A Dance with the Waves
- A Journey of Ten Years
- The Lessons I’ve Learned
- Boats of Many Colours
- The Light of Small Joys
- The Deity of the Waves – Thoughts on Chemo and the River Within
- This Is My Journey
- Pushing Through
- Happy Birthday Max Shadow!
- Bodily Able – A Reflection
- The Power of Forgetting
Tag Archives: health
Still Pissed! – MS and the Bladder
It’s amazing what has become commonplace for me. There has been a lot of change in my life recently and as usual, my body is feeling it. I’ve had a real lack of energy and motivation for pretty much anything … Continue reading
In the Company of Elivra
I am always fascinated by the way that my body changes. Max Shadow has been active lately. For over a year, I’ve had trouble dressing myself. My leg muscles have been incredibly tight. I haven’t been able to raise my … Continue reading
Posted in Max Shadow
Tagged Elvira, family, Fampyra, Feet, health, help, hydrate, Journey, Leg pain, life, Medical System, Medication, meditation, mental-health, Mistress of the Dark, Multiple Sclerosis, Muscles, Neurologist, nurse, Pain, pain level, pharmacist, relax, truth, walking, Writing
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Thirteen Years
It’s been thirteen years since my life changed. I can pinpoint it to the very day. Part of me can’t believe that I’ve lived with multiple sclerosis for this long. The journey with this disease can’t possibly gone on for … Continue reading
Posted in Anniversary, Brain Fog, Canes, Cerebral Palsy, Challenges, Cybil Paulsen, Max Shadow, Multiple Sclerosis
Tagged botox, Cerebral Palsy, Change, Choice, Choose, Cure, Cybil Paulsen, health, Journey, Learning, life, love, Max Shadow, mental-health, Multiple Sclerosis, passage of time, positivity, reality, Spasms, Thirteen Years, Time, Tremors, Writing
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The Labyrinth of Me
I had a Multiple Sclerosis flare up recently. It started with a back spasm during the day one afternoon that left me in a lot of pain. It was all downhill from there. I knew that something was wrong the … Continue reading
Posted in Brain Fog, Fatique, Flare Up, MINOTAUR, Rebel Satori Press
Tagged Balance, Brain Fog, chronic-illness, Dizziness, fatigue, flareup, health, Interview, Jamieson Wolf, life, mental-health, MINOTAUR, Multiple Sclerosis, Rebel Satori Press, Writing
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Levels and Lymphocytes
I feel like my life has been on hold lately. I’m waiting for a fourth round of Mavenclad. It should be my final round of the medication. I’m waiting for my lymphocytes to get to 0.8 and there is no … Continue reading
Posted in Chemo, Mavenclad
Tagged blood levels, health, joy, life, lymphocytes, Mavenclad, mental-health, on hold, positive thinking, release, simple things, Writing
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The Able Body and the Mountain Within
When my journey with multiple sclerosis first began, I couldn’t wait to walk without a cane. After being bedridden for over a month, I willed myself to walk again through sheer will and stubbornness. I knew at the time that … Continue reading
Posted in Balance, Canes, Challenges
Tagged Ableism, battle, Cane, Cerebral Palsy, Disability, exercise, health, hope, Internalized ableism, Journey, Mobility device, Multiple Sclerosis, Strength, walking, weakness
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A Maven Clad In Raven’s Clothes
A few years ago, I had an appointment with my neurologist. The results of my latest MRI had shown new lesions in my brain, meaning that the multiple sclerosis was progressing. It was odd looking at my brain. What had … Continue reading
Posted in Chemo, Mavenclad
Tagged Anger, Bloodwork, cancer, chronic-illness, Depression, health, Journey, Lack of Information, Lack of Support, Mavenclad, Medical results, Medical System, mental-health, MRI, Multiple Sclerosis, Neurofilament Light Chain, Neurologist, One Step, Round, Test, Treatment, Two Steps, Upset, Worry
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A Personal Victory!
I had a personal victory today. My body is at its worst in the mornings. For almost a year, I’ve been having issues getting dressed. My left leg is fine and I’m able to put it in my pantleg with … Continue reading
Posted in Challenges, Milestones, self esteem
Tagged Balance, exercise, fitness, flareup, health, movement, Multiple Sclerosis, Personal Victory, Spasms, victory, yoga
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