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Recent Posts
- Thirteen Years
- Waiting for Max Shadow
- Learning to Like Myself – A Reflection
- The Labyrinth of Me
- Levels and Lymphocytes
- The Impossible Mountain
- The Able Body and the Mountain Within
- A Maven Clad In Raven’s Clothes
- The Cyclone That Life Can Be
- A Personal Victory!
- The Language of Smiles
- A Dance with the Waves
- A Journey of Ten Years
- The Lessons I’ve Learned
- Boats of Many Colours
- The Light of Small Joys
- The Deity of the Waves – Thoughts on Chemo and the River Within
- This Is My Journey
- Pushing Through
- Happy Birthday Max Shadow!
- Bodily Able – A Reflection
- The Power of Forgetting
- Captain Maven and the Shadow Man: AVAILABLE NOW!
- The Many Ways of Mavenclad
- The Light Through the Trees
Category Archives: Multiple Sclerosis
Thirteen Years
It’s been thirteen years since my life changed. I can pinpoint it to the very day. Part of me can’t believe that I’ve lived with multiple sclerosis for this long. The journey with this disease can’t possibly gone on for … Continue reading
Posted in Anniversary, Brain Fog, Canes, Cerebral Palsy, Challenges, Cybil Paulsen, Max Shadow, Multiple Sclerosis
Tagged botox, Cerebral Palsy, Change, Choice, Choose, Cure, Cybil Paulsen, health, Journey, Learning, life, love, Max Shadow, mental-health, Multiple Sclerosis, passage of time, positivity, reality, Spasms, Thirteen Years, Time, Tremors, Writing
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A Dance with the Waves
A neighbour gave me a gentle telling off today. For the past three weeks, I’ve been going through a multiple sclerosis flare up. I thought I was just tired at first and suffering from burn out. Then that tiredness became … Continue reading
Posted in Flare Up, Multiple Sclerosis, Symptoms
Tagged Balance, diagnosis, fatigue, Flare Up, heal, joy, Multiple Sclerosis, nausea, Painting, push through, relapse, relapse and remitting, remitting, rest, time off, Vertigo, working, Writing
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A Journey of Ten Years
It’s hard to believe that it’s already been ten years. I remember when I was first diagnosed. At the moment that the neurologist said those words, I thought my life was over. “I’m so sorry, you have relapse and remitting … Continue reading
Posted in Challenges, Milestones, Multiple Sclerosis
Tagged Becoming, Butterfly, Caterpillar, diagnosis, Growth, Happy Birthday, Max Shadow, ten years, Who I am
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The Lessons I’ve Learned
Ten years ago, my life changed not once, but twice. The first time it changed, I had no control over what happened, and it ripped over my body like a storm. The second time it changed, I was the one … Continue reading
Posted in Anniversary, Lessons, Multiple Sclerosis
Tagged Anniversary, Body, Cerebral Palsy, greatfulness, knowledge, Little Yellow Magnet, Mind, Multiple Sclerosis, self, Spirit, Symptoms, ten years, Thankfulness, walking
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Boats of Many Colours
I forgot again. There has been this pressure building in my mind and I couldn’t figure out why. My emotions have been like a constantly moving sea, unknowable and almost insurmountable. I’ve been carrying around depression like a hairshirt, feeling … Continue reading
Posted in Cerebral Palsy, Depression, Multiple Sclerosis, Self Harm, Suicidal Thoughts
Tagged boats, colours, dark forest, depressions, despair, joy, love, Sadness, suicide
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The Light of Small Joys
The thing is most of the time I feel okay. I can pretend that there is nothing wrong, that I’m totally fine and I don’t have anything to worry about…but then my mind reminds me of the fact that I’m … Continue reading
Posted in Cerebral Palsy, Depression, Fear, joy, Multiple Sclerosis, Symptoms
Tagged Cerebral Palsy, Chemo, falls, famil, friends, hot flashes, husband, joy, Mavenclad, Multiple Sclerosis, Small Joys, Symptoms
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Two Steps at a Time 