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Recent Posts
- Thirteen Years
- Waiting for Max Shadow
- Learning to Like Myself – A Reflection
- The Labyrinth of Me
- Levels and Lymphocytes
- The Impossible Mountain
- The Able Body and the Mountain Within
- A Maven Clad In Raven’s Clothes
- The Cyclone That Life Can Be
- A Personal Victory!
- The Language of Smiles
- A Dance with the Waves
- A Journey of Ten Years
- The Lessons I’ve Learned
- Boats of Many Colours
- The Light of Small Joys
- The Deity of the Waves – Thoughts on Chemo and the River Within
- This Is My Journey
- Pushing Through
- Happy Birthday Max Shadow!
- Bodily Able – A Reflection
- The Power of Forgetting
- Captain Maven and the Shadow Man: AVAILABLE NOW!
- The Many Ways of Mavenclad
- The Light Through the Trees
Category Archives: Cerebral Palsy
Thirteen Years
It’s been thirteen years since my life changed. I can pinpoint it to the very day. Part of me can’t believe that I’ve lived with multiple sclerosis for this long. The journey with this disease can’t possibly gone on for … Continue reading
Posted in Anniversary, Brain Fog, Canes, Cerebral Palsy, Challenges, Cybil Paulsen, Max Shadow, Multiple Sclerosis
Tagged botox, Cerebral Palsy, Change, Choice, Choose, Cure, Cybil Paulsen, health, Journey, Learning, life, love, Max Shadow, mental-health, Multiple Sclerosis, passage of time, positivity, reality, Spasms, Thirteen Years, Time, Tremors, Writing
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Boats of Many Colours
I forgot again. There has been this pressure building in my mind and I couldn’t figure out why. My emotions have been like a constantly moving sea, unknowable and almost insurmountable. I’ve been carrying around depression like a hairshirt, feeling … Continue reading
Posted in Cerebral Palsy, Depression, Multiple Sclerosis, Self Harm, Suicidal Thoughts
Tagged boats, colours, dark forest, depressions, despair, joy, love, Sadness, suicide
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The Light of Small Joys
The thing is most of the time I feel okay. I can pretend that there is nothing wrong, that I’m totally fine and I don’t have anything to worry about…but then my mind reminds me of the fact that I’m … Continue reading
Posted in Cerebral Palsy, Depression, Fear, joy, Multiple Sclerosis, Symptoms
Tagged Cerebral Palsy, Chemo, falls, famil, friends, hot flashes, husband, joy, Mavenclad, Multiple Sclerosis, Small Joys, Symptoms
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Two Steps at a Time 