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Recent Posts
- Thirteen Years
- Waiting for Max Shadow
- Learning to Like Myself – A Reflection
- The Labyrinth of Me
- Levels and Lymphocytes
- The Impossible Mountain
- The Able Body and the Mountain Within
- A Maven Clad In Raven’s Clothes
- The Cyclone That Life Can Be
- A Personal Victory!
- The Language of Smiles
- A Dance with the Waves
- A Journey of Ten Years
- The Lessons I’ve Learned
- Boats of Many Colours
- The Light of Small Joys
- The Deity of the Waves – Thoughts on Chemo and the River Within
- This Is My Journey
- Pushing Through
- Happy Birthday Max Shadow!
- Bodily Able – A Reflection
- The Power of Forgetting
- Captain Maven and the Shadow Man: AVAILABLE NOW!
- The Many Ways of Mavenclad
- The Light Through the Trees
Tag Archives: Spasms
Thirteen Years
It’s been thirteen years since my life changed. I can pinpoint it to the very day. Part of me can’t believe that I’ve lived with multiple sclerosis for this long. The journey with this disease can’t possibly gone on for … Continue reading
Posted in Anniversary, Brain Fog, Canes, Cerebral Palsy, Challenges, Cybil Paulsen, Max Shadow, Multiple Sclerosis
Tagged botox, Cerebral Palsy, Change, Choice, Choose, Cure, Cybil Paulsen, health, Journey, Learning, life, love, Max Shadow, mental-health, Multiple Sclerosis, passage of time, positivity, reality, Spasms, Thirteen Years, Time, Tremors, Writing
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Waiting for Max Shadow
I spend a lot of my time waiting. I’m currently waiting for the lymphocytes in my blood to get to 0.8 before I can start my fourth and final round with Mavenclad. My immune system has been wiped away three … Continue reading
Posted in Cybil Paulsen, Depression, Max Shadow
Tagged Bloodwork, Breathe, Cerebral Palsy, Choose, Depression, faith, life, Live, love, Mavenclad, mental-health, Multiple Sclerosis, Pain, positivity, Recuperate, rest, results, Sigh, Spasms, Speech, Stop, Symptoms, Testing, Urination, Waiting, Writing
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A Personal Victory!
I had a personal victory today. My body is at its worst in the mornings. For almost a year, I’ve been having issues getting dressed. My left leg is fine and I’m able to put it in my pantleg with … Continue reading
Posted in Challenges, Milestones, self esteem
Tagged Balance, exercise, fitness, flareup, health, movement, Multiple Sclerosis, Personal Victory, Spasms, victory, yoga
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Relearning How to Live
This is a piece that I was asked to write for today, the International Day of Person’s with Disabilities. It was published in a newsletter at work and while it was nerve wracking to put myself out there like that, … Continue reading
Posted in Bladder problems, Brain Fog, Canes, Depression, discomfort, fatigue, Spasms, Speech, Tremors, Writing
Tagged Balance, Cerebral Palsy, Challenges, Grateful, Living, Multiple Sclerosis, Pain, Spasms, Symptoms, Tremors, Vertigo, walking
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Two Steps at a Time 