Pages
-
Recent Posts
- Bodily Able – A Reflection
- The Power of Forgetting
- Captain Maven and the Shadow Man: AVAILABLE NOW!
- The Many Ways of Mavenclad
- The Light Through the Trees
- Someone I Used to Know
- The Challenges I Overcome
- Relearning How to Live
- Captain Maven and the Shadow Man – Coming Soon!
- On the Shores of Acceptance
- The Maybe of Mavenclad
- Embracing the Changing Landscape
- A Star Upon the Waves
- Living My Best Life Two Steps at a Time
- One Day at A Time
- I’m On TV! Let’s Chat with Derick Fage
- Happy Birthday Little Yellow Magnet!
- On Becoming Aware
- On What You Can’t See
- On Forgetting Fear
- Visible Invisible
- Have Cane Will Travel
- Letting Go Of Fear
- Claiming My Shadow Self
- Letting Go and Holding On
Tag Archives: Multiple Sclerosis
Captain Maven and the Shadow Man: AVAILABLE NOW!
Fantastic news! Captain Maven and the Shadow Man is available now! I meant to have this book published for the holidays but with one thing and another, that didn’t happen. I did put it out on my blog, but this … Continue reading
Relearning How to Live
This is a piece that I was asked to write for today, the International Day of Person’s with Disabilities. It was published in a newsletter at work and while it was nerve wracking to put myself out there like that, … Continue reading
Posted in Bladder problems, Brain Fog, Canes, Depression, discomfort, fatigue, Spasms, Speech, Tremors, Writing
Tagged Balance, Cerebral Palsy, Challenges, Grateful, Living, Multiple Sclerosis, Pain, Spasms, Symptoms, Tremors, Vertigo, walking
Leave a comment
Captain Maven and the Shadow Man – Coming Soon!
I live with Cerebral Palsy and Multiple Sclerosis. After my last MRI a few months ago, they found new lesions in my brain caused by the Multiple Sclerosis. I was put on a new drug called Mavenclad. Its purpose is … Continue reading
Posted in Writing
Tagged Apo-Desmopressin, Baclofin, Captain Maven, CBD Oil, Cerebral Palsy, Mavenclad, Multiple Sclerosis, Sandoz Solifenacin, The Shadow Man, Trazodone
Leave a comment
On the Shores of Acceptance
I feel like I’ve been waiting for a long time. In reality, it hasn’t been that long, not really. Time is no longer relative and it either speed up or slows down depending on the news you are waiting for. … Continue reading
Posted in Autoimmune Deficiency Disease, Covid-19, Mavenclad, MRI's, Neurologist Appointments, results, Side Effects, Symptoms
Tagged Mavenclad, MS, Multiple Sclerosis, Symptoms
Leave a comment
The Maybe of Mavenclad
I’m afraid. As September comes ever closer, so does my medication change. During July, September seemed so far away but now as we get to the end of August, September 21st seems so much closer. On that day, I will … Continue reading
Posted in Depression, Fear, invisible disabilities, Stress, Talking
Tagged Changing Meidcation, Maybe, Multiple Sclerosis, Symptoms
Leave a comment
Embracing the Changing Landscape
If having Multiple Sclerosis has taught me anything, it’s to try to embrace change, however much I dislike it. I had another MRI in April of this year, my first in a while. I finally had my MRI follow up … Continue reading
A Star Upon the Waves
I’ve been losing control of myself for a while now. Over the past year, I’ve noticed a worsening in my symptoms. I am in far more pain than I ever have been before. It’s gotten to the point in the … Continue reading
Posted in Lesions, MRI's, results
Tagged Cerebral Palsy, Lesions, Multiple Sclerosis, Sparkle On!, Symptoms
Leave a comment
On What You Can’t See
I was asked to speak at a conference at work about what it is like to live with two invisible disabilities. I immediately said yes. I’m open about my disabilities; heck, I write about it on here for everyone to … Continue reading
Looking for the Oracle
Before I was diagnosed with relapse and remitting Multiple Sclerosis, I thought I could cure myself. Someone had said that it was all about mind over matter. I could choose not to be sick. I could choose my destiny and … Continue reading
Posted in Balance, Brain Fog, Depression, Disability Tropes, Nothing Without Us
Tagged Multiple Sclerosis, Story Behind the Story
Leave a comment
The Stone Man Speaks
Multiple Sclerosis is a curious disease, just as Cerebral Palsy is a mysterious disability. Even after so many years of living with them, they always like to keep me guessing…mostly because I’m no longer sure which one does what. It … Continue reading
Posted in Falling, Spasms, Speech, Symptoms, Talking
Tagged Ami McKay, Cerebral Palsy, Cybil Paulsen, Jack Nicholson, Max Shadow, Multiple Sclerosis
Leave a comment