Tag Archives: Multiple Sclerosis

The Lessons I’ve Learned

Ten years ago, my life changed not once, but twice. The first time it changed, I had no control over what happened, and it ripped over my body like a storm. The second time it changed, I was the one … Continue reading

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The Light of Small Joys

The thing is most of the time I feel okay. I can pretend that there is nothing wrong, that I’m totally fine and I don’t have anything to worry about…but then my mind reminds me of the fact that I’m … Continue reading

Posted in Cerebral Palsy, Depression, Fear, joy, Multiple Sclerosis, Symptoms | Tagged , , , , , , , , , , , | Leave a comment

The Deity of the Waves – Thoughts on Chemo and the River Within

I had three dizzy spells today. I was sitting for one, standing for another and walking in my apartment for the third. The dizziness and nausea passed quickly and each time I was able to hold on to something to … Continue reading

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Pushing Through

I have difficulty sitting still. I’ve always been this way. I fill up my time with different projects and things to keep my mind and body busy. I’m always writing a new book, a new short story or a poem … Continue reading

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Happy Birthday Max Shadow!

I was diagnosed with Relapse and Remitting Multiple Sclerosis nine years ago today. I thought about what I wanted to write to honour today and the following letter to my multiple sclerosis is what came out. I hope you enjoy … Continue reading

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Captain Maven and the Shadow Man: AVAILABLE NOW!

Fantastic news! Captain Maven and the Shadow Man is available now! I meant to have this book published for the holidays but with one thing and another, that didn’t happen. I did put it out on my blog, but this … Continue reading

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Relearning How to Live

This is a piece that I was asked to write for today, the International Day of Person’s with Disabilities. It was published in a newsletter at work and while it was nerve wracking to put myself out there like that, … Continue reading

Posted in Bladder problems, Brain Fog, Canes, Depression, discomfort, fatigue, Spasms, Speech, Tremors, Writing | Tagged , , , , , , , , , , , | Leave a comment

Captain Maven and the Shadow Man – Coming Soon!

I live with Cerebral Palsy and Multiple Sclerosis. After my last MRI a few months ago, they found new lesions in my brain caused by the Multiple Sclerosis. I was put on a new drug called Mavenclad. Its purpose is … Continue reading

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On the Shores of Acceptance

I feel like I’ve been waiting for a long time. In reality, it hasn’t been that long, not really. Time is no longer relative and it either speed up or slows down depending on the news you are waiting for. … Continue reading

Posted in Autoimmune Deficiency Disease, Covid-19, Mavenclad, MRI's, Neurologist Appointments, results, Side Effects, Symptoms | Tagged , , , | Leave a comment

The Maybe of Mavenclad

I’m afraid. As September comes ever closer, so does my medication change. During July, September seemed so far away but now as we get to the end of August, September 21st seems so much closer. On that day, I will … Continue reading

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