Tag Archives: Multiple Sclerosis

Captain Maven and the Shadow Man: AVAILABLE NOW!

Fantastic news! Captain Maven and the Shadow Man is available now! I meant to have this book published for the holidays but with one thing and another, that didn’t happen. I did put it out on my blog, but this … Continue reading

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Relearning How to Live

This is a piece that I was asked to write for today, the International Day of Person’s with Disabilities. It was published in a newsletter at work and while it was nerve wracking to put myself out there like that, … Continue reading

Posted in Bladder problems, Brain Fog, Canes, Depression, discomfort, fatigue, Spasms, Speech, Tremors, Writing | Tagged , , , , , , , , , , , | Leave a comment

Captain Maven and the Shadow Man – Coming Soon!

I live with Cerebral Palsy and Multiple Sclerosis. After my last MRI a few months ago, they found new lesions in my brain caused by the Multiple Sclerosis. I was put on a new drug called Mavenclad. Its purpose is … Continue reading

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On the Shores of Acceptance

I feel like I’ve been waiting for a long time. In reality, it hasn’t been that long, not really. Time is no longer relative and it either speed up or slows down depending on the news you are waiting for. … Continue reading

Posted in Autoimmune Deficiency Disease, Covid-19, Mavenclad, MRI's, Neurologist Appointments, results, Side Effects, Symptoms | Tagged , , , | Leave a comment

The Maybe of Mavenclad

I’m afraid. As September comes ever closer, so does my medication change. During July, September seemed so far away but now as we get to the end of August, September 21st seems so much closer. On that day, I will … Continue reading

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Embracing the Changing Landscape

If having Multiple Sclerosis has taught me anything, it’s to try to embrace change, however much I dislike it. I had another MRI in April of this year, my first in a while. I finally had my MRI follow up … Continue reading

Posted in Doctors, MRI's, Nothing Without Us, self esteem, Small Victories, Walking | Tagged , , , , , , | Leave a comment

A Star Upon the Waves

I’ve been losing control of myself for a while now. Over the past year, I’ve noticed a worsening in my symptoms. I am in far more pain than I ever have been before. It’s gotten to the point in the … Continue reading

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On What You Can’t See

I was asked to speak at a conference at work about what it is like to live with two invisible disabilities. I immediately said yes. I’m open about my disabilities; heck, I write about it on here for everyone to … Continue reading

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Looking for the Oracle

Before I was diagnosed with relapse and remitting Multiple Sclerosis, I thought I could cure myself. Someone had said that it was all about mind over matter. I could choose not to be sick. I could choose my destiny and … Continue reading

Posted in Balance, Brain Fog, Depression, Disability Tropes, Nothing Without Us | Tagged , | Leave a comment

The Stone Man Speaks

Multiple Sclerosis is a curious disease, just as Cerebral Palsy is a mysterious disability. Even after so many years of living with them, they always like to keep me guessing…mostly because I’m no longer sure which one does what. It … Continue reading

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