Tag Archives: Multiple Sclerosis

Happy Birthday Max Shadow!

Posted on August 21, 2022 by Jamieson Wolf

I was diagnosed with Relapse and Remitting Multiple Sclerosis nine years ago today. I thought about what I wanted to write to honour today and the following letter to my multiple sclerosis is what came out. I hope you enjoy … Continue reading →

Posted in Happy Birthday | Tagged diagnosis, doctor, Letter, Max Shadow, Multiple Sclerosis | Leave a comment

Captain Maven and the Shadow Man: AVAILABLE NOW!

Posted on April 24, 2022 by Jamieson Wolf

Fantastic news! Captain Maven and the Shadow Man is available now! I meant to have this book published for the holidays but with one thing and another, that didn’t happen. I did put it out on my blog, but this … Continue reading →

Tagged Apo-Desmopressin, Apo-Tizanadine, Baclofin, Captain Maven, Cerebral Palsy, Mavenclad, Multiple Sclerosis, Novella, Sandoz Solifenacin, Shadow Man, Trazodone | Leave a comment

Relearning How to Live

Posted on December 4, 2021 by Jamieson Wolf

This is a piece that I was asked to write for today, the International Day of Person’s with Disabilities. It was published in a newsletter at work and while it was nerve wracking to put myself out there like that, … Continue reading →

Posted in Bladder problems, Brain Fog, Canes, Depression, discomfort, fatigue, Spasms, Speech, Tremors, Writing | Tagged Balance, Cerebral Palsy, Challenges, Grateful, Living, Multiple Sclerosis, Pain, Spasms, Symptoms, Tremors, Vertigo, walking | Leave a comment

Captain Maven and the Shadow Man – Coming Soon!

Posted on December 3, 2021 by Jamieson Wolf

I live with Cerebral Palsy and Multiple Sclerosis. After my last MRI a few months ago, they found new lesions in my brain caused by the Multiple Sclerosis. I was put on a new drug called Mavenclad. Its purpose is … Continue reading →

Posted in Writing | Tagged Apo-Desmopressin, Baclofin, Captain Maven, CBD Oil, Cerebral Palsy, Mavenclad, Multiple Sclerosis, Sandoz Solifenacin, The Shadow Man, Trazodone | Leave a comment

On the Shores of Acceptance

Posted on October 13, 2021 by Jamieson Wolf

I feel like I’ve been waiting for a long time. In reality, it hasn’t been that long, not really. Time is no longer relative and it either speed up or slows down depending on the news you are waiting for. … Continue reading →

Posted in Autoimmune Deficiency Disease, Covid-19, Mavenclad, MRI's, Neurologist Appointments, results, Side Effects, Symptoms | Tagged Mavenclad, MS, Multiple Sclerosis, Symptoms | Leave a comment

The Maybe of Mavenclad

Posted on August 29, 2021 by Jamieson Wolf

I’m afraid. As September comes ever closer, so does my medication change. During July, September seemed so far away but now as we get to the end of August, September 21st seems so much closer. On that day, I will … Continue reading →

Posted in Depression, Fear, invisible disabilities, Stress, Talking | Tagged Changing Meidcation, Maybe, Multiple Sclerosis, Symptoms | Leave a comment

Embracing the Changing Landscape

Posted on July 17, 2021 by Jamieson Wolf

If having Multiple Sclerosis has taught me anything, it’s to try to embrace change, however much I dislike it. I had another MRI in April of this year, my first in a while. I finally had my MRI follow up … Continue reading →

Posted in Doctors, MRI's, Nothing Without Us, self esteem, Small Victories, Walking | Tagged climbing the flat mountain, invisible disabilities, MRI results, Multiple Sclerosis, Sparkle On!, Symptoms, walking | Leave a comment

A Star Upon the Waves

Posted on June 22, 2021 by Jamieson Wolf

I’ve been losing control of myself for a while now. Over the past year, I’ve noticed a worsening in my symptoms. I am in far more pain than I ever have been before. It’s gotten to the point in the … Continue reading →

Posted in Lesions, MRI's, results | Tagged Cerebral Palsy, Lesions, Multiple Sclerosis, Sparkle On!, Symptoms | Leave a comment

On What You Can’t See

Posted on February 26, 2021 by Jamieson Wolf

I was asked to speak at a conference at work about what it is like to live with two invisible disabilities. I immediately said yes. I’m open about my disabilities; heck, I write about it on here for everyone to … Continue reading →

Posted in Disability, Disability Tropes, Invisible, invisible disabilities | Tagged Cerebral Palsy, invisible disabilities, Multiple Sclerosis, perceptions, Talking | Leave a comment

Looking for the Oracle

Posted on January 14, 2020 by Jamieson Wolf

Before I was diagnosed with relapse and remitting Multiple Sclerosis, I thought I could cure myself. Someone had said that it was all about mind over matter. I could choose not to be sick. I could choose my destiny and … Continue reading →

Posted in Balance, Brain Fog, Depression, Disability Tropes, Nothing Without Us | Tagged Multiple Sclerosis, Story Behind the Story | Leave a comment