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Recent Posts
- The Lessons I’ve Learned
- Boats of Many Colours
- The Light of Small Joys
- The Deity of the Waves – Thoughts on Chemo and the River Within
- This Is My Journey
- Pushing Through
- Happy Birthday Max Shadow!
- Bodily Able – A Reflection
- The Power of Forgetting
- Captain Maven and the Shadow Man: AVAILABLE NOW!
- The Many Ways of Mavenclad
- The Light Through the Trees
- Someone I Used to Know
- The Challenges I Overcome
- Relearning How to Live
- Captain Maven and the Shadow Man – Coming Soon!
- On the Shores of Acceptance
- The Maybe of Mavenclad
- Embracing the Changing Landscape
- A Star Upon the Waves
- Living My Best Life Two Steps at a Time
- One Day at A Time
- I’m On TV! Let’s Chat with Derick Fage
- Happy Birthday Little Yellow Magnet!
- On Becoming Aware
Tag Archives: Cerebral Palsy
The Lessons I’ve Learned
Ten years ago, my life changed not once, but twice. The first time it changed, I had no control over what happened, and it ripped over my body like a storm. The second time it changed, I was the one … Continue reading
Posted in Anniversary, Lessons, Multiple Sclerosis
Tagged Anniversary, Body, Cerebral Palsy, greatfulness, knowledge, Little Yellow Magnet, Mind, Multiple Sclerosis, self, Spirit, Symptoms, ten years, Thankfulness, walking
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The Light of Small Joys
The thing is most of the time I feel okay. I can pretend that there is nothing wrong, that I’m totally fine and I don’t have anything to worry about…but then my mind reminds me of the fact that I’m … Continue reading
Posted in Cerebral Palsy, Depression, Fear, joy, Multiple Sclerosis, Symptoms
Tagged Cerebral Palsy, Chemo, falls, famil, friends, hot flashes, husband, joy, Mavenclad, Multiple Sclerosis, Small Joys, Symptoms
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The Deity of the Waves – Thoughts on Chemo and the River Within
I had three dizzy spells today. I was sitting for one, standing for another and walking in my apartment for the third. The dizziness and nausea passed quickly and each time I was able to hold on to something to … Continue reading
Posted in Chemo, Mavenclad
Tagged Cerebral Palsy, Chemo, Mavenclad, memory loss, Multiple Sclerosis, Symptoms
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Pushing Through
I have difficulty sitting still. I’ve always been this way. I fill up my time with different projects and things to keep my mind and body busy. I’m always writing a new book, a new short story or a poem … Continue reading
Posted in Pain, Stillness
Tagged Body, Cerebral Palsy, honour, Multiple Sclerosis, Pain, productive, pushing through, Stillness, Temple, Vertibrae
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Captain Maven and the Shadow Man: AVAILABLE NOW!
Fantastic news! Captain Maven and the Shadow Man is available now! I meant to have this book published for the holidays but with one thing and another, that didn’t happen. I did put it out on my blog, but this … Continue reading
Relearning How to Live
This is a piece that I was asked to write for today, the International Day of Person’s with Disabilities. It was published in a newsletter at work and while it was nerve wracking to put myself out there like that, … Continue reading
Posted in Bladder problems, Brain Fog, Canes, Depression, discomfort, fatigue, Spasms, Speech, Tremors, Writing
Tagged Balance, Cerebral Palsy, Challenges, Grateful, Living, Multiple Sclerosis, Pain, Spasms, Symptoms, Tremors, Vertigo, walking
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Captain Maven and the Shadow Man – Coming Soon!
I live with Cerebral Palsy and Multiple Sclerosis. After my last MRI a few months ago, they found new lesions in my brain caused by the Multiple Sclerosis. I was put on a new drug called Mavenclad. Its purpose is … Continue reading
Posted in Writing
Tagged Apo-Desmopressin, Baclofin, Captain Maven, CBD Oil, Cerebral Palsy, Mavenclad, Multiple Sclerosis, Sandoz Solifenacin, The Shadow Man, Trazodone
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A Star Upon the Waves
I’ve been losing control of myself for a while now. Over the past year, I’ve noticed a worsening in my symptoms. I am in far more pain than I ever have been before. It’s gotten to the point in the … Continue reading
Posted in Lesions, MRI's, results
Tagged Cerebral Palsy, Lesions, Multiple Sclerosis, Sparkle On!, Symptoms
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On What You Can’t See
I was asked to speak at a conference at work about what it is like to live with two invisible disabilities. I immediately said yes. I’m open about my disabilities; heck, I write about it on here for everyone to … Continue reading
The Stone Man Speaks
Multiple Sclerosis is a curious disease, just as Cerebral Palsy is a mysterious disability. Even after so many years of living with them, they always like to keep me guessing…mostly because I’m no longer sure which one does what. It … Continue reading
Posted in Falling, Spasms, Speech, Symptoms, Talking
Tagged Ami McKay, Cerebral Palsy, Cybil Paulsen, Jack Nicholson, Max Shadow, Multiple Sclerosis
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