Tag Archives: Cerebral Palsy

The Deity of the Waves – Thoughts on Chemo and the River Within

I had three dizzy spells today. I was sitting for one, standing for another and walking in my apartment for the third. The dizziness and nausea passed quickly and each time I was able to hold on to something to … Continue reading

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Pushing Through

I have difficulty sitting still. I’ve always been this way. I fill up my time with different projects and things to keep my mind and body busy. I’m always writing a new book, a new short story or a poem … Continue reading

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Captain Maven and the Shadow Man: AVAILABLE NOW!

Fantastic news! Captain Maven and the Shadow Man is available now! I meant to have this book published for the holidays but with one thing and another, that didn’t happen. I did put it out on my blog, but this … Continue reading

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Relearning How to Live

This is a piece that I was asked to write for today, the International Day of Person’s with Disabilities. It was published in a newsletter at work and while it was nerve wracking to put myself out there like that, … Continue reading

Posted in Bladder problems, Brain Fog, Canes, Depression, discomfort, fatigue, Spasms, Speech, Tremors, Writing | Tagged , , , , , , , , , , , | Leave a comment

Captain Maven and the Shadow Man – Coming Soon!

I live with Cerebral Palsy and Multiple Sclerosis. After my last MRI a few months ago, they found new lesions in my brain caused by the Multiple Sclerosis. I was put on a new drug called Mavenclad. Its purpose is … Continue reading

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A Star Upon the Waves

I’ve been losing control of myself for a while now. Over the past year, I’ve noticed a worsening in my symptoms. I am in far more pain than I ever have been before. It’s gotten to the point in the … Continue reading

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On What You Can’t See

I was asked to speak at a conference at work about what it is like to live with two invisible disabilities. I immediately said yes. I’m open about my disabilities; heck, I write about it on here for everyone to … Continue reading

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The Stone Man Speaks

Multiple Sclerosis is a curious disease, just as Cerebral Palsy is a mysterious disability. Even after so many years of living with them, they always like to keep me guessing…mostly because I’m no longer sure which one does what. It … Continue reading

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Little Yellow Magnet – Available Now!

I’m thrilled to announce that Little Yellow Magnet is AVAILABLE NOW! Isn’t that amazing? Here’s a bit about the book: Life can change in an instant. Jamieson learns this the hard way.   Waking one morning to find he has … Continue reading

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The Lion and the Internal Orchestra

I’d like to take a moment to talk about pain. Everyone experiences pain differently. Maybe it’s muscle pain or internal pain. Perhaps it’s a mixture of both. For myself, there is no rhyme and reason to it. My Multiple Sclerosis … Continue reading

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