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Recent Posts
- Thirteen Years
- Waiting for Max Shadow
- Learning to Like Myself – A Reflection
- The Labyrinth of Me
- Levels and Lymphocytes
- The Impossible Mountain
- The Able Body and the Mountain Within
- A Maven Clad In Raven’s Clothes
- The Cyclone That Life Can Be
- A Personal Victory!
- The Language of Smiles
- A Dance with the Waves
- A Journey of Ten Years
- The Lessons I’ve Learned
- Boats of Many Colours
- The Light of Small Joys
- The Deity of the Waves – Thoughts on Chemo and the River Within
- This Is My Journey
- Pushing Through
- Happy Birthday Max Shadow!
- Bodily Able – A Reflection
- The Power of Forgetting
- Captain Maven and the Shadow Man: AVAILABLE NOW!
- The Many Ways of Mavenclad
- The Light Through the Trees
Tag Archives: Max Shadow
Thirteen Years
It’s been thirteen years since my life changed. I can pinpoint it to the very day. Part of me can’t believe that I’ve lived with multiple sclerosis for this long. The journey with this disease can’t possibly gone on for … Continue reading
Posted in Anniversary, Brain Fog, Canes, Cerebral Palsy, Challenges, Cybil Paulsen, Max Shadow, Multiple Sclerosis
Tagged botox, Cerebral Palsy, Change, Choice, Choose, Cure, Cybil Paulsen, health, Journey, Learning, life, love, Max Shadow, mental-health, Multiple Sclerosis, passage of time, positivity, reality, Spasms, Thirteen Years, Time, Tremors, Writing
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A Journey of Ten Years
It’s hard to believe that it’s already been ten years. I remember when I was first diagnosed. At the moment that the neurologist said those words, I thought my life was over. “I’m so sorry, you have relapse and remitting … Continue reading
Posted in Challenges, Milestones, Multiple Sclerosis
Tagged Becoming, Butterfly, Caterpillar, diagnosis, Growth, Happy Birthday, Max Shadow, ten years, Who I am
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Happy Birthday Max Shadow!
I was diagnosed with Relapse and Remitting Multiple Sclerosis nine years ago today. I thought about what I wanted to write to honour today and the following letter to my multiple sclerosis is what came out. I hope you enjoy … Continue reading
Posted in Happy Birthday
Tagged diagnosis, doctor, Letter, Max Shadow, Multiple Sclerosis
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Letting Go and Holding On
Life is funny when you stop to think about it. I’ve been carrying around a thrum of sadness for a few weeks now. While my general outlook on life has been positive, there was still this ache inside of me. … Continue reading
Posted in Covid-19, Depression, Disability, Happy Birthday, Little Yellow Magnet, Memoir
Tagged Fear, Happy Birthday, Max Shadow, Sadness
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The Stone Man Speaks
Multiple Sclerosis is a curious disease, just as Cerebral Palsy is a mysterious disability. Even after so many years of living with them, they always like to keep me guessing…mostly because I’m no longer sure which one does what. It … Continue reading
Posted in Falling, Spasms, Speech, Symptoms, Talking
Tagged Ami McKay, Cerebral Palsy, Cybil Paulsen, Jack Nicholson, Max Shadow, Multiple Sclerosis
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What Max Shadow Taught Me
Six years ago, on August 21st, my life changed forever. Since January of 2013, I had been living in fear of what was inside of me. I had been living in fear of myself. After months of testing and study, … Continue reading
Posted in joy, Milestones, Small Victories, Thankful
Tagged Gratefulness, Max Shadow, Thankfulness
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Two Steps at a Time 