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Recent Posts
- Learning to Like Myself – A Reflection
- The Labyrinth of Me
- Levels and Lymphocytes
- The Impossible Mountain
- The Able Body and the Mountain Within
- A Maven Clad In Raven’s Clothes
- The Cyclone That Life Can Be
- A Personal Victory!
- The Language of Smiles
- A Dance with the Waves
- A Journey of Ten Years
- The Lessons I’ve Learned
- Boats of Many Colours
- The Light of Small Joys
- The Deity of the Waves – Thoughts on Chemo and the River Within
- This Is My Journey
- Pushing Through
- Happy Birthday Max Shadow!
- Bodily Able – A Reflection
- The Power of Forgetting
- Captain Maven and the Shadow Man: AVAILABLE NOW!
- The Many Ways of Mavenclad
- The Light Through the Trees
- Someone I Used to Know
- The Challenges I Overcome
Category Archives: Mavenclad
Levels and Lymphocytes
I feel like my life has been on hold lately. I’m waiting for a fourth round of Mavenclad. It should be my final round of the medication. I’m waiting for my lymphocytes to get to 0.8 and there is no … Continue reading
Posted in Chemo, Mavenclad
Tagged blood levels, health, joy, life, lymphocytes, Mavenclad, mental-health, on hold, positive thinking, release, simple things, Writing
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A Maven Clad In Raven’s Clothes
A few years ago, I had an appointment with my neurologist. The results of my latest MRI had shown new lesions in my brain, meaning that the multiple sclerosis was progressing. It was odd looking at my brain. What had … Continue reading
Posted in Chemo, Mavenclad
Tagged Anger, Bloodwork, cancer, chronic-illness, Depression, health, Journey, Lack of Information, Lack of Support, Mavenclad, Medical results, Medical System, mental-health, MRI, Multiple Sclerosis, Neurofilament Light Chain, Neurologist, One Step, Round, Test, Treatment, Two Steps, Upset, Worry
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The Deity of the Waves – Thoughts on Chemo and the River Within
I had three dizzy spells today. I was sitting for one, standing for another and walking in my apartment for the third. The dizziness and nausea passed quickly and each time I was able to hold on to something to … Continue reading
Posted in Chemo, Mavenclad
Tagged Cerebral Palsy, Chemo, Mavenclad, memory loss, Multiple Sclerosis, Symptoms
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The Power of Forgetting
I’ve started this blog post a few times. At first, it was a rundown of everything I’ve already talked about, how I was diagnosed with multiple sclerosis nine years ago, how I almost took my own life, how I was … Continue reading
Posted in Mavenclad, Memoir, memory, Milestones
Tagged Adventures, memories, Nine Years, Travels, What I've Done
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The Many Ways of Mavenclad
It’s been a while since I posted anything on here. It’s hard to believe that a few months has gone by since my last post, however when I stop to think about it, it’s not that surprising. I’ve been dealing … Continue reading
Posted in Challenges, Disability, Doctors, Mavenclad
Tagged Advocate, Assistance, Doctor Fail, Heatlh, Mavenclad, Medical, Medical Failure, Treatment
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On the Shores of Acceptance
I feel like I’ve been waiting for a long time. In reality, it hasn’t been that long, not really. Time is no longer relative and it either speed up or slows down depending on the news you are waiting for. … Continue reading
Posted in Autoimmune Deficiency Disease, Covid-19, Mavenclad, MRI's, Neurologist Appointments, results, Side Effects, Symptoms
Tagged Mavenclad, MS, Multiple Sclerosis, Symptoms
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Two Steps at a Time 