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Recent Posts
- The Deity of the Waves – Thoughts on Chemo and the River Within
- This Is My Journey
- Pushing Through
- Happy Birthday Max Shadow!
- Bodily Able – A Reflection
- The Power of Forgetting
- Captain Maven and the Shadow Man: AVAILABLE NOW!
- The Many Ways of Mavenclad
- The Light Through the Trees
- Someone I Used to Know
- The Challenges I Overcome
- Relearning How to Live
- Captain Maven and the Shadow Man – Coming Soon!
- On the Shores of Acceptance
- The Maybe of Mavenclad
- Embracing the Changing Landscape
- A Star Upon the Waves
- Living My Best Life Two Steps at a Time
- One Day at A Time
- I’m On TV! Let’s Chat with Derick Fage
- Happy Birthday Little Yellow Magnet!
- On Becoming Aware
- On What You Can’t See
- On Forgetting Fear
- Visible Invisible
Tag Archives: Symptoms
The Deity of the Waves – Thoughts on Chemo and the River Within
I had three dizzy spells today. I was sitting for one, standing for another and walking in my apartment for the third. The dizziness and nausea passed quickly and each time I was able to hold on to something to … Continue reading
Posted in Chemo, Mavenclad
Tagged Cerebral Palsy, Chemo, Mavenclad, memory loss, Multiple Sclerosis, Symptoms
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Relearning How to Live
This is a piece that I was asked to write for today, the International Day of Person’s with Disabilities. It was published in a newsletter at work and while it was nerve wracking to put myself out there like that, … Continue reading
Posted in Bladder problems, Brain Fog, Canes, Depression, discomfort, fatigue, Spasms, Speech, Tremors, Writing
Tagged Balance, Cerebral Palsy, Challenges, Grateful, Living, Multiple Sclerosis, Pain, Spasms, Symptoms, Tremors, Vertigo, walking
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On the Shores of Acceptance
I feel like I’ve been waiting for a long time. In reality, it hasn’t been that long, not really. Time is no longer relative and it either speed up or slows down depending on the news you are waiting for. … Continue reading
Posted in Autoimmune Deficiency Disease, Covid-19, Mavenclad, MRI's, Neurologist Appointments, results, Side Effects, Symptoms
Tagged Mavenclad, MS, Multiple Sclerosis, Symptoms
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The Maybe of Mavenclad
I’m afraid. As September comes ever closer, so does my medication change. During July, September seemed so far away but now as we get to the end of August, September 21st seems so much closer. On that day, I will … Continue reading
Posted in Depression, Fear, invisible disabilities, Stress, Talking
Tagged Changing Meidcation, Maybe, Multiple Sclerosis, Symptoms
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Embracing the Changing Landscape
If having Multiple Sclerosis has taught me anything, it’s to try to embrace change, however much I dislike it. I had another MRI in April of this year, my first in a while. I finally had my MRI follow up … Continue reading
A Star Upon the Waves
I’ve been losing control of myself for a while now. Over the past year, I’ve noticed a worsening in my symptoms. I am in far more pain than I ever have been before. It’s gotten to the point in the … Continue reading
Posted in Lesions, MRI's, results
Tagged Cerebral Palsy, Lesions, Multiple Sclerosis, Sparkle On!, Symptoms
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Living My Best Life Two Steps at a Time
I was talking to one of my friends about the pain levels I live with. The pain has been so bad lately. In the morning, I have to sit down while I brush my teeth, just so that I can … Continue reading
On Becoming Aware
Today is the first day in MS Awareness Month. When I woke this morning, I had no idea that it was MS Awareness month. I put on an audiobook to listen to in the background and chose to listen to … Continue reading
Posted in Falling, Little Yellow Magnet, Memoir, MS Awareness Month
Tagged Awareness, Growth, Journy, Learning, MS, MS Awareness Month, Symptoms
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Stress and the Shadow Man
I know that stress is one of the worst things for people with multiple sclerosis. I’ve been experiencing a lot of it. It’s keeping me awake at night, so I’m having to take my prescribed sleeping pill more than usual. … Continue reading
The Lion and the Internal Orchestra
I’d like to take a moment to talk about pain. Everyone experiences pain differently. Maybe it’s muscle pain or internal pain. Perhaps it’s a mixture of both. For myself, there is no rhyme and reason to it. My Multiple Sclerosis … Continue reading
Posted in Brain Fog, Depression, discomfort, Muscles, Spasms
Tagged Cerebral Palsy, Multiple Sclerosis, Orchestra, Pain, Strength, Symptoms, Tattoos
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Two Steps at a Time 