Tag Archives: life

Learning to Like Myself – A Reflection

As the year begins to wind into darkness, I usually find myself starting to think of the main thing that I’d like to focus on for the year ahead. My focus words for 2025 were Bridges and Boundaries. The intent … Continue reading

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The Labyrinth of Me

I had a Multiple Sclerosis flare up recently. It started with a back spasm during the day one afternoon that left me in a lot of pain. It was all downhill from there. I knew that something was wrong the … Continue reading

Posted in Brain Fog, Fatique, Flare Up, MINOTAUR, Rebel Satori Press | Tagged , , , , , , , , , , , , , , | Leave a comment

Levels and Lymphocytes

I feel like my life has been on hold lately. I’m waiting for a fourth round of Mavenclad. It should be my final round of the medication. I’m waiting for my lymphocytes to get to 0.8 and there is no … Continue reading

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The Impossible Mountain

It’s not often that I’m made to feel disabled. Objectively, I know I’m disabled. I was born with spastic cerebral palsy and I have relapse and remitting multiple sclerosis. Despite that, or because of the disabilities that I live with, … Continue reading

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The Cyclone That Life Can Be

My adventure continues. I’ve been quiet on here lately. I was surprised to see that the last post on here was from September 2024. Surely it can’t have been that long? The world just seems too big sometimes, does anyone … Continue reading

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Stepping Out of the Box and Breaking the Routine

I’ve been struggling a lot lately. I’ve been trying to break out of the box that I’ve put myself in. That box is built on routine. When I was first diagnosed with multiple sclerosis, this routine helped. It helped me … Continue reading

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