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Recent Posts
- Learning to Like Myself – A Reflection
- The Labyrinth of Me
- Levels and Lymphocytes
- The Impossible Mountain
- The Able Body and the Mountain Within
- A Maven Clad In Raven’s Clothes
- The Cyclone That Life Can Be
- A Personal Victory!
- The Language of Smiles
- A Dance with the Waves
- A Journey of Ten Years
- The Lessons I’ve Learned
- Boats of Many Colours
- The Light of Small Joys
- The Deity of the Waves – Thoughts on Chemo and the River Within
- This Is My Journey
- Pushing Through
- Happy Birthday Max Shadow!
- Bodily Able – A Reflection
- The Power of Forgetting
- Captain Maven and the Shadow Man: AVAILABLE NOW!
- The Many Ways of Mavenclad
- The Light Through the Trees
- Someone I Used to Know
- The Challenges I Overcome
Author Archives: Jamieson Wolf
Learning to Like Myself – A Reflection
As the year begins to wind into darkness, I usually find myself starting to think of the main thing that I’d like to focus on for the year ahead. My focus words for 2025 were Bridges and Boundaries. The intent … Continue reading
Posted in self esteem, Self Harm, self love
Tagged ADHD, Autistic, Cerebral Palsy, Disability, Focus, Introspection, life, Like, love, mental-health, Neurodivergent, Power, Reflection, Self-Like, Self-Love, Words, Writing
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The Labyrinth of Me
I had a Multiple Sclerosis flare up recently. It started with a back spasm during the day one afternoon that left me in a lot of pain. It was all downhill from there. I knew that something was wrong the … Continue reading
Posted in Brain Fog, Fatique, Flare Up, MINOTAUR, Rebel Satori Press
Tagged Balance, Brain Fog, chronic-illness, Dizziness, fatigue, flareup, health, Interview, Jamieson Wolf, life, mental-health, MINOTAUR, Multiple Sclerosis, Rebel Satori Press, Writing
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Levels and Lymphocytes
I feel like my life has been on hold lately. I’m waiting for a fourth round of Mavenclad. It should be my final round of the medication. I’m waiting for my lymphocytes to get to 0.8 and there is no … Continue reading
Posted in Chemo, Mavenclad
Tagged blood levels, health, joy, life, lymphocytes, Mavenclad, mental-health, on hold, positive thinking, release, simple things, Writing
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The Impossible Mountain
It’s not often that I’m made to feel disabled. Objectively, I know I’m disabled. I was born with spastic cerebral palsy and I have relapse and remitting multiple sclerosis. Despite that, or because of the disabilities that I live with, … Continue reading
Posted in Balance
Tagged accessibility, Anger, art, Balance, cafe, Change, creativity, exercise, life, Multiple Sclerosis, narrative, reach out, speak up, thought, travel, Voice, walking, Writing
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The Able Body and the Mountain Within
When my journey with multiple sclerosis first began, I couldn’t wait to walk without a cane. After being bedridden for over a month, I willed myself to walk again through sheer will and stubbornness. I knew at the time that … Continue reading
Posted in Balance, Canes, Challenges
Tagged Ableism, battle, Cane, Cerebral Palsy, Disability, exercise, health, hope, Internalized ableism, Journey, Mobility device, Multiple Sclerosis, Strength, walking, weakness
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A Maven Clad In Raven’s Clothes
A few years ago, I had an appointment with my neurologist. The results of my latest MRI had shown new lesions in my brain, meaning that the multiple sclerosis was progressing. It was odd looking at my brain. What had … Continue reading
Posted in Chemo, Mavenclad
Tagged Anger, Bloodwork, cancer, chronic-illness, Depression, health, Journey, Lack of Information, Lack of Support, Mavenclad, Medical results, Medical System, mental-health, MRI, Multiple Sclerosis, Neurofilament Light Chain, Neurologist, One Step, Round, Test, Treatment, Two Steps, Upset, Worry
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The Cyclone That Life Can Be
My adventure continues. I’ve been quiet on here lately. I was surprised to see that the last post on here was from September 2024. Surely it can’t have been that long? The world just seems too big sometimes, does anyone … Continue reading
A Personal Victory!
I had a personal victory today. My body is at its worst in the mornings. For almost a year, I’ve been having issues getting dressed. My left leg is fine and I’m able to put it in my pantleg with … Continue reading
Posted in Challenges, Milestones, self esteem
Tagged Balance, exercise, fitness, flareup, health, movement, Multiple Sclerosis, Personal Victory, Spasms, victory, yoga
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The Language of Smiles
The thing is, I know I’m disabled. I mean, I just turned forty-six, so I’ve been disabled for a long time, and I live with it every day. There are times where the act of doing something takes time, or … Continue reading
A Dance with the Waves
A neighbour gave me a gentle telling off today. For the past three weeks, I’ve been going through a multiple sclerosis flare up. I thought I was just tired at first and suffering from burn out. Then that tiredness became … Continue reading
Posted in Flare Up, Multiple Sclerosis, Symptoms
Tagged Balance, diagnosis, fatigue, Flare Up, heal, joy, Multiple Sclerosis, nausea, Painting, push through, relapse, relapse and remitting, remitting, rest, time off, Vertigo, working, Writing
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Two Steps at a Time 