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Recent Posts
- The Lessons I’ve Learned
- Boats of Many Colours
- The Light of Small Joys
- The Deity of the Waves – Thoughts on Chemo and the River Within
- This Is My Journey
- Pushing Through
- Happy Birthday Max Shadow!
- Bodily Able – A Reflection
- The Power of Forgetting
- Captain Maven and the Shadow Man: AVAILABLE NOW!
- The Many Ways of Mavenclad
- The Light Through the Trees
- Someone I Used to Know
- The Challenges I Overcome
- Relearning How to Live
- Captain Maven and the Shadow Man – Coming Soon!
- On the Shores of Acceptance
- The Maybe of Mavenclad
- Embracing the Changing Landscape
- A Star Upon the Waves
- Living My Best Life Two Steps at a Time
- One Day at A Time
- I’m On TV! Let’s Chat with Derick Fage
- Happy Birthday Little Yellow Magnet!
- On Becoming Aware
Author Archives: Jamieson Wolf
The Many Ways of Mavenclad
It’s been a while since I posted anything on here. It’s hard to believe that a few months has gone by since my last post, however when I stop to think about it, it’s not that surprising. I’ve been dealing … Continue reading
Posted in Challenges, Disability, Doctors, Mavenclad
Tagged Advocate, Assistance, Doctor Fail, Heatlh, Mavenclad, Medical, Medical Failure, Treatment
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The Light Through the Trees
Content Warning: Depression, Suicidal Thoughts and Self Harm It all gets to be too much sometimes. Like everyone else, I’ve been living in the cloud of covid. I haven’t been sleeping well, my temper is closer to the surface than … Continue reading
Posted in Depression, Self Harm, Suicidal Thoughts
Tagged Christmas, Depression, Every Day, everyday angels, Gifts, Mavenclad, Medication, My Truth, Self Harm, Suicidal Thoughts, Thankful, Therapy
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Someone I Used to Know
Something interesting happened the other day. When my multiple sclerosis first hit, I lost a lot of my memory. I used to remember the plot of every book I’d ever read and every movie I’d ever seen. I could quote … Continue reading
Posted in memory
Tagged blank, Brain Fog, dick tracy, know, memories, memory, memory cloud, people
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The Challenges I Overcome
I was asked to give a talk to the people I work with to celebrate the International Day of Person’s with Disabilities. These are the notes that I wrote. I planned to read them out loud, but ended up just … Continue reading
Posted in Autoimmune Deficiency Disease, Challenges, Falling, fatigue, Lesions, self esteem, Small Victories, Spasms, Speech, Symptoms, Writing
Tagged Challenges, Depression, exercise, flat mountains, Grateful, international persons with disabilities day, Overcome, Painting, Small Joys, Talking, Typing, walking, Writing
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Relearning How to Live
This is a piece that I was asked to write for today, the International Day of Person’s with Disabilities. It was published in a newsletter at work and while it was nerve wracking to put myself out there like that, … Continue reading
Posted in Bladder problems, Brain Fog, Canes, Depression, discomfort, fatigue, Spasms, Speech, Tremors, Writing
Tagged Balance, Cerebral Palsy, Challenges, Grateful, Living, Multiple Sclerosis, Pain, Spasms, Symptoms, Tremors, Vertigo, walking
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Captain Maven and the Shadow Man – Coming Soon!
I live with Cerebral Palsy and Multiple Sclerosis. After my last MRI a few months ago, they found new lesions in my brain caused by the Multiple Sclerosis. I was put on a new drug called Mavenclad. Its purpose is … Continue reading
Posted in Writing
Tagged Apo-Desmopressin, Baclofin, Captain Maven, CBD Oil, Cerebral Palsy, Mavenclad, Multiple Sclerosis, Sandoz Solifenacin, The Shadow Man, Trazodone
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On the Shores of Acceptance
I feel like I’ve been waiting for a long time. In reality, it hasn’t been that long, not really. Time is no longer relative and it either speed up or slows down depending on the news you are waiting for. … Continue reading
Posted in Autoimmune Deficiency Disease, Covid-19, Mavenclad, MRI's, Neurologist Appointments, results, Side Effects, Symptoms
Tagged Mavenclad, MS, Multiple Sclerosis, Symptoms
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The Maybe of Mavenclad
I’m afraid. As September comes ever closer, so does my medication change. During July, September seemed so far away but now as we get to the end of August, September 21st seems so much closer. On that day, I will … Continue reading
Posted in Depression, Fear, invisible disabilities, Stress, Talking
Tagged Changing Meidcation, Maybe, Multiple Sclerosis, Symptoms
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Embracing the Changing Landscape
If having Multiple Sclerosis has taught me anything, it’s to try to embrace change, however much I dislike it. I had another MRI in April of this year, my first in a while. I finally had my MRI follow up … Continue reading
A Star Upon the Waves
I’ve been losing control of myself for a while now. Over the past year, I’ve noticed a worsening in my symptoms. I am in far more pain than I ever have been before. It’s gotten to the point in the … Continue reading
Posted in Lesions, MRI's, results
Tagged Cerebral Palsy, Lesions, Multiple Sclerosis, Sparkle On!, Symptoms
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Two Steps at a Time 