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Recent Posts
- Still Pissed! – MS and the Bladder
- Disability Pride and Why It Matters
- In the Company of Elivra
- Thirteen Years
- Waiting for Max Shadow
- Learning to Like Myself – A Reflection
- The Labyrinth of Me
- Levels and Lymphocytes
- The Impossible Mountain
- The Able Body and the Mountain Within
- A Maven Clad In Raven’s Clothes
- The Cyclone That Life Can Be
- A Personal Victory!
- The Language of Smiles
- A Dance with the Waves
- A Journey of Ten Years
- The Lessons I’ve Learned
- Boats of Many Colours
- The Light of Small Joys
- The Deity of the Waves – Thoughts on Chemo and the River Within
- This Is My Journey
- Pushing Through
- Happy Birthday Max Shadow!
- Bodily Able – A Reflection
- The Power of Forgetting
Author Archives: Jamieson Wolf
A Maven Clad In Raven’s Clothes
A few years ago, I had an appointment with my neurologist. The results of my latest MRI had shown new lesions in my brain, meaning that the multiple sclerosis was progressing. It was odd looking at my brain. What had … Continue reading
Posted in Chemo, Mavenclad
Tagged Anger, Bloodwork, cancer, chronic-illness, Depression, health, Journey, Lack of Information, Lack of Support, Mavenclad, Medical results, Medical System, mental-health, MRI, Multiple Sclerosis, Neurofilament Light Chain, Neurologist, One Step, Round, Test, Treatment, Two Steps, Upset, Worry
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The Cyclone That Life Can Be
My adventure continues. I’ve been quiet on here lately. I was surprised to see that the last post on here was from September 2024. Surely it can’t have been that long? The world just seems too big sometimes, does anyone … Continue reading
A Personal Victory!
I had a personal victory today. My body is at its worst in the mornings. For almost a year, I’ve been having issues getting dressed. My left leg is fine and I’m able to put it in my pantleg with … Continue reading
Posted in Challenges, Milestones, self esteem
Tagged Balance, exercise, fitness, flareup, health, movement, Multiple Sclerosis, Personal Victory, Spasms, victory, yoga
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The Language of Smiles
The thing is, I know I’m disabled. I mean, I just turned forty-six, so I’ve been disabled for a long time, and I live with it every day. There are times where the act of doing something takes time, or … Continue reading
A Dance with the Waves
A neighbour gave me a gentle telling off today. For the past three weeks, I’ve been going through a multiple sclerosis flare up. I thought I was just tired at first and suffering from burn out. Then that tiredness became … Continue reading
Posted in Flare Up, Multiple Sclerosis, Symptoms
Tagged Balance, diagnosis, fatigue, Flare Up, heal, joy, Multiple Sclerosis, nausea, Painting, push through, relapse, relapse and remitting, remitting, rest, time off, Vertigo, working, Writing
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A Journey of Ten Years
It’s hard to believe that it’s already been ten years. I remember when I was first diagnosed. At the moment that the neurologist said those words, I thought my life was over. “I’m so sorry, you have relapse and remitting … Continue reading
Posted in Challenges, Milestones, Multiple Sclerosis
Tagged Becoming, Butterfly, Caterpillar, diagnosis, Growth, Happy Birthday, Max Shadow, ten years, Who I am
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The Lessons I’ve Learned
Ten years ago, my life changed not once, but twice. The first time it changed, I had no control over what happened, and it ripped over my body like a storm. The second time it changed, I was the one … Continue reading
Posted in Anniversary, Lessons, Multiple Sclerosis
Tagged Anniversary, Body, Cerebral Palsy, greatfulness, knowledge, Little Yellow Magnet, Mind, Multiple Sclerosis, self, Spirit, Symptoms, ten years, Thankfulness, walking
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Boats of Many Colours
I forgot again. There has been this pressure building in my mind and I couldn’t figure out why. My emotions have been like a constantly moving sea, unknowable and almost insurmountable. I’ve been carrying around depression like a hairshirt, feeling … Continue reading
Posted in Cerebral Palsy, Depression, Multiple Sclerosis, Self Harm, Suicidal Thoughts
Tagged boats, colours, dark forest, depressions, despair, joy, love, Sadness, suicide
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The Light of Small Joys
The thing is most of the time I feel okay. I can pretend that there is nothing wrong, that I’m totally fine and I don’t have anything to worry about…but then my mind reminds me of the fact that I’m … Continue reading
Posted in Cerebral Palsy, Depression, Fear, joy, Multiple Sclerosis, Symptoms
Tagged Cerebral Palsy, Chemo, falls, famil, friends, hot flashes, husband, joy, Mavenclad, Multiple Sclerosis, Small Joys, Symptoms
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The Deity of the Waves – Thoughts on Chemo and the River Within
I had three dizzy spells today. I was sitting for one, standing for another and walking in my apartment for the third. The dizziness and nausea passed quickly and each time I was able to hold on to something to … Continue reading
Posted in Chemo, Mavenclad
Tagged Cerebral Palsy, Chemo, Mavenclad, memory loss, Multiple Sclerosis, Symptoms
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