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Recent Posts
- The Lessons I’ve Learned
- Boats of Many Colours
- The Light of Small Joys
- The Deity of the Waves – Thoughts on Chemo and the River Within
- This Is My Journey
- Pushing Through
- Happy Birthday Max Shadow!
- Bodily Able – A Reflection
- The Power of Forgetting
- Captain Maven and the Shadow Man: AVAILABLE NOW!
- The Many Ways of Mavenclad
- The Light Through the Trees
- Someone I Used to Know
- The Challenges I Overcome
- Relearning How to Live
- Captain Maven and the Shadow Man – Coming Soon!
- On the Shores of Acceptance
- The Maybe of Mavenclad
- Embracing the Changing Landscape
- A Star Upon the Waves
- Living My Best Life Two Steps at a Time
- One Day at A Time
- I’m On TV! Let’s Chat with Derick Fage
- Happy Birthday Little Yellow Magnet!
- On Becoming Aware
Category Archives: discomfort
Relearning How to Live
This is a piece that I was asked to write for today, the International Day of Person’s with Disabilities. It was published in a newsletter at work and while it was nerve wracking to put myself out there like that, … Continue reading
Posted in Bladder problems, Brain Fog, Canes, Depression, discomfort, fatigue, Spasms, Speech, Tremors, Writing
Tagged Balance, Cerebral Palsy, Challenges, Grateful, Living, Multiple Sclerosis, Pain, Spasms, Symptoms, Tremors, Vertigo, walking
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The Lion and the Internal Orchestra
I’d like to take a moment to talk about pain. Everyone experiences pain differently. Maybe it’s muscle pain or internal pain. Perhaps it’s a mixture of both. For myself, there is no rhyme and reason to it. My Multiple Sclerosis … Continue reading
Posted in Brain Fog, Depression, discomfort, Muscles, Spasms
Tagged Cerebral Palsy, Multiple Sclerosis, Orchestra, Pain, Strength, Symptoms, Tattoos
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Heavy Metal Days and the Strength Card
I am in pain of some sort twenty-four hours a day, seven days a week. I never get a vacation or a day off, I never get to go on a holiday from the pain. It is my constant companion … Continue reading
Posted in Brain Fog, discomfort, Fatique, Spasms
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When the Invisible Becomes the Visible
I’m lucky, I know that. Unlike a lot of other people who suffer with Multiple Sclerosis or Cerebral Palsy, mine hide most of the time. I wear them under the skin and the way they affect my body usually can’t … Continue reading
Relax Days
The other day, my right side was numb upon waking. My arm and right leg were heavy, as if I was moving through jello. I was able to get out and go to work without my cane. The numbness worried … Continue reading
Posted in discomfort, Fatique, Spasms, Walking
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A Cloak of Needles
It started last night. I was sitting at a potluck dinner table. I just remember feeling a blinding red flash of pain cross my shoulders. As I sat there, it ran down my spine and through the rest of my … Continue reading
Posted in discomfort, Spasms, swelling, Walking
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Grateful and Thankful
My body is unsure of itself. I wake up with my legs feeling like someone has tightened all my muscles during the night. Walking is difficult and wobbly. I know it’s because of the spasms that happen during the night … Continue reading
Posted in discomfort, Muscles, Spasms, Words
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Wishful Dancing
I am sure that my legs have it in for me. Yesterday, on the buss, I completely lost my balance. One moment I was standing, and then, when the driver turned, my legs gave out. I fell into the lap … Continue reading
Posted in discomfort, Muscles, People
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Thankful for Pain
Last week, another package came for me. I knew that I would have to pick it up at the post office. I am ashamed to admit that I was afraid to go. I was afraid to go to the Post … Continue reading
Posted in discomfort, Muscles, Spasms, Walking
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