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Recent Posts
- Learning to Like Myself – A Reflection
- The Labyrinth of Me
- Levels and Lymphocytes
- The Impossible Mountain
- The Able Body and the Mountain Within
- A Maven Clad In Raven’s Clothes
- The Cyclone That Life Can Be
- A Personal Victory!
- The Language of Smiles
- A Dance with the Waves
- A Journey of Ten Years
- The Lessons I’ve Learned
- Boats of Many Colours
- The Light of Small Joys
- The Deity of the Waves – Thoughts on Chemo and the River Within
- This Is My Journey
- Pushing Through
- Happy Birthday Max Shadow!
- Bodily Able – A Reflection
- The Power of Forgetting
- Captain Maven and the Shadow Man: AVAILABLE NOW!
- The Many Ways of Mavenclad
- The Light Through the Trees
- Someone I Used to Know
- The Challenges I Overcome
Tag Archives: Mavenclad
Levels and Lymphocytes
I feel like my life has been on hold lately. I’m waiting for a fourth round of Mavenclad. It should be my final round of the medication. I’m waiting for my lymphocytes to get to 0.8 and there is no … Continue reading
Posted in Chemo, Mavenclad
Tagged blood levels, health, joy, life, lymphocytes, Mavenclad, mental-health, on hold, positive thinking, release, simple things, Writing
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A Maven Clad In Raven’s Clothes
A few years ago, I had an appointment with my neurologist. The results of my latest MRI had shown new lesions in my brain, meaning that the multiple sclerosis was progressing. It was odd looking at my brain. What had … Continue reading
Posted in Chemo, Mavenclad
Tagged Anger, Bloodwork, cancer, chronic-illness, Depression, health, Journey, Lack of Information, Lack of Support, Mavenclad, Medical results, Medical System, mental-health, MRI, Multiple Sclerosis, Neurofilament Light Chain, Neurologist, One Step, Round, Test, Treatment, Two Steps, Upset, Worry
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The Light of Small Joys
The thing is most of the time I feel okay. I can pretend that there is nothing wrong, that I’m totally fine and I don’t have anything to worry about…but then my mind reminds me of the fact that I’m … Continue reading
Posted in Cerebral Palsy, Depression, Fear, joy, Multiple Sclerosis, Symptoms
Tagged Cerebral Palsy, Chemo, falls, famil, friends, hot flashes, husband, joy, Mavenclad, Multiple Sclerosis, Small Joys, Symptoms
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The Deity of the Waves – Thoughts on Chemo and the River Within
I had three dizzy spells today. I was sitting for one, standing for another and walking in my apartment for the third. The dizziness and nausea passed quickly and each time I was able to hold on to something to … Continue reading
Posted in Chemo, Mavenclad
Tagged Cerebral Palsy, Chemo, Mavenclad, memory loss, Multiple Sclerosis, Symptoms
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This Is My Journey
I’ve had a lot of different health issues lately. To begin with, I saw my chiropractor a few days ago. It was an assessment appointment to see how far I’ve come in my healing. I broke one of the vertebrae … Continue reading
Captain Maven and the Shadow Man: AVAILABLE NOW!
Fantastic news! Captain Maven and the Shadow Man is available now! I meant to have this book published for the holidays but with one thing and another, that didn’t happen. I did put it out on my blog, but this … Continue reading
The Many Ways of Mavenclad
It’s been a while since I posted anything on here. It’s hard to believe that a few months has gone by since my last post, however when I stop to think about it, it’s not that surprising. I’ve been dealing … Continue reading
Posted in Challenges, Disability, Doctors, Mavenclad
Tagged Advocate, Assistance, Doctor Fail, Heatlh, Mavenclad, Medical, Medical Failure, Treatment
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The Light Through the Trees
Content Warning: Depression, Suicidal Thoughts and Self Harm It all gets to be too much sometimes. Like everyone else, I’ve been living in the cloud of covid. I haven’t been sleeping well, my temper is closer to the surface than … Continue reading
Posted in Depression, Self Harm, Suicidal Thoughts
Tagged Christmas, Depression, Every Day, everyday angels, Gifts, Mavenclad, Medication, My Truth, Self Harm, Suicidal Thoughts, Thankful, Therapy
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Captain Maven and the Shadow Man – Coming Soon!
I live with Cerebral Palsy and Multiple Sclerosis. After my last MRI a few months ago, they found new lesions in my brain caused by the Multiple Sclerosis. I was put on a new drug called Mavenclad. Its purpose is … Continue reading
Posted in Writing
Tagged Apo-Desmopressin, Baclofin, Captain Maven, CBD Oil, Cerebral Palsy, Mavenclad, Multiple Sclerosis, Sandoz Solifenacin, The Shadow Man, Trazodone
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On the Shores of Acceptance
I feel like I’ve been waiting for a long time. In reality, it hasn’t been that long, not really. Time is no longer relative and it either speed up or slows down depending on the news you are waiting for. … Continue reading
Posted in Autoimmune Deficiency Disease, Covid-19, Mavenclad, MRI's, Neurologist Appointments, results, Side Effects, Symptoms
Tagged Mavenclad, MS, Multiple Sclerosis, Symptoms
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Two Steps at a Time 