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Recent Posts
- In the Company of Elivra
- Thirteen Years
- Waiting for Max Shadow
- Learning to Like Myself – A Reflection
- The Labyrinth of Me
- Levels and Lymphocytes
- The Impossible Mountain
- The Able Body and the Mountain Within
- A Maven Clad In Raven’s Clothes
- The Cyclone That Life Can Be
- A Personal Victory!
- The Language of Smiles
- A Dance with the Waves
- A Journey of Ten Years
- The Lessons I’ve Learned
- Boats of Many Colours
- The Light of Small Joys
- The Deity of the Waves – Thoughts on Chemo and the River Within
- This Is My Journey
- Pushing Through
- Happy Birthday Max Shadow!
- Bodily Able – A Reflection
- The Power of Forgetting
- Captain Maven and the Shadow Man: AVAILABLE NOW!
- The Many Ways of Mavenclad
Author Archives: Jamieson Wolf
Happy Birthday Max Shadow!
I was diagnosed with Relapse and Remitting Multiple Sclerosis nine years ago today. I thought about what I wanted to write to honour today and the following letter to my multiple sclerosis is what came out. I hope you enjoy … Continue reading
Posted in Happy Birthday
Tagged diagnosis, doctor, Letter, Max Shadow, Multiple Sclerosis
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Bodily Able – A Reflection
I don’t often feel as if I live in an able-bodied world. I know that we do. There isn’t much that is made with people who are disabled in mind. Those who aren’t disabled don’t have to think about anything, … Continue reading
Posted in bladder, Challenges, Disability, Walking
Tagged Able-bodied, Annoyances, bladder, Challenges, Differently Abled, Disabled, Island of Misfit Toys, Mountains, Overcome
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The Power of Forgetting
I’ve started this blog post a few times. At first, it was a rundown of everything I’ve already talked about, how I was diagnosed with multiple sclerosis nine years ago, how I almost took my own life, how I was … Continue reading
Posted in Mavenclad, Memoir, memory, Milestones
Tagged Adventures, memories, Nine Years, Travels, What I've Done
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Captain Maven and the Shadow Man: AVAILABLE NOW!
Fantastic news! Captain Maven and the Shadow Man is available now! I meant to have this book published for the holidays but with one thing and another, that didn’t happen. I did put it out on my blog, but this … Continue reading
The Many Ways of Mavenclad
It’s been a while since I posted anything on here. It’s hard to believe that a few months has gone by since my last post, however when I stop to think about it, it’s not that surprising. I’ve been dealing … Continue reading
Posted in Challenges, Disability, Doctors, Mavenclad
Tagged Advocate, Assistance, Doctor Fail, Heatlh, Mavenclad, Medical, Medical Failure, Treatment
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The Light Through the Trees
Content Warning: Depression, Suicidal Thoughts and Self Harm It all gets to be too much sometimes. Like everyone else, I’ve been living in the cloud of covid. I haven’t been sleeping well, my temper is closer to the surface than … Continue reading
Posted in Depression, Self Harm, Suicidal Thoughts
Tagged Christmas, Depression, Every Day, everyday angels, Gifts, Mavenclad, Medication, My Truth, Self Harm, Suicidal Thoughts, Thankful, Therapy
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Someone I Used to Know
Something interesting happened the other day. When my multiple sclerosis first hit, I lost a lot of my memory. I used to remember the plot of every book I’d ever read and every movie I’d ever seen. I could quote … Continue reading
Posted in memory
Tagged blank, Brain Fog, dick tracy, know, memories, memory, memory cloud, people
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The Challenges I Overcome
I was asked to give a talk to the people I work with to celebrate the International Day of Person’s with Disabilities. These are the notes that I wrote. I planned to read them out loud, but ended up just … Continue reading
Posted in Autoimmune Deficiency Disease, Challenges, Falling, fatigue, Lesions, self esteem, Small Victories, Spasms, Speech, Symptoms, Writing
Tagged Challenges, Depression, exercise, flat mountains, Grateful, international persons with disabilities day, Overcome, Painting, Small Joys, Talking, Typing, walking, Writing
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Relearning How to Live
This is a piece that I was asked to write for today, the International Day of Person’s with Disabilities. It was published in a newsletter at work and while it was nerve wracking to put myself out there like that, … Continue reading
Posted in Bladder problems, Brain Fog, Canes, Depression, discomfort, fatigue, Spasms, Speech, Tremors, Writing
Tagged Balance, Cerebral Palsy, Challenges, Grateful, Living, Multiple Sclerosis, Pain, Spasms, Symptoms, Tremors, Vertigo, walking
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Captain Maven and the Shadow Man – Coming Soon!
I live with Cerebral Palsy and Multiple Sclerosis. After my last MRI a few months ago, they found new lesions in my brain caused by the Multiple Sclerosis. I was put on a new drug called Mavenclad. Its purpose is … Continue reading
Posted in Writing
Tagged Apo-Desmopressin, Baclofin, Captain Maven, CBD Oil, Cerebral Palsy, Mavenclad, Multiple Sclerosis, Sandoz Solifenacin, The Shadow Man, Trazodone
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Two Steps at a Time 