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Recent Posts
- Learning to Like Myself – A Reflection
- The Labyrinth of Me
- Levels and Lymphocytes
- The Impossible Mountain
- The Able Body and the Mountain Within
- A Maven Clad In Raven’s Clothes
- The Cyclone That Life Can Be
- A Personal Victory!
- The Language of Smiles
- A Dance with the Waves
- A Journey of Ten Years
- The Lessons I’ve Learned
- Boats of Many Colours
- The Light of Small Joys
- The Deity of the Waves – Thoughts on Chemo and the River Within
- This Is My Journey
- Pushing Through
- Happy Birthday Max Shadow!
- Bodily Able – A Reflection
- The Power of Forgetting
- Captain Maven and the Shadow Man: AVAILABLE NOW!
- The Many Ways of Mavenclad
- The Light Through the Trees
- Someone I Used to Know
- The Challenges I Overcome
Tag Archives: Cerebral Palsy
Captain Maven and the Shadow Man – Coming Soon!
I live with Cerebral Palsy and Multiple Sclerosis. After my last MRI a few months ago, they found new lesions in my brain caused by the Multiple Sclerosis. I was put on a new drug called Mavenclad. Its purpose is … Continue reading
Posted in Writing
Tagged Apo-Desmopressin, Baclofin, Captain Maven, CBD Oil, Cerebral Palsy, Mavenclad, Multiple Sclerosis, Sandoz Solifenacin, The Shadow Man, Trazodone
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A Star Upon the Waves
I’ve been losing control of myself for a while now. Over the past year, I’ve noticed a worsening in my symptoms. I am in far more pain than I ever have been before. It’s gotten to the point in the … Continue reading
Posted in Lesions, MRI's, results
Tagged Cerebral Palsy, Lesions, Multiple Sclerosis, Sparkle On!, Symptoms
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On What You Can’t See
I was asked to speak at a conference at work about what it is like to live with two invisible disabilities. I immediately said yes. I’m open about my disabilities; heck, I write about it on here for everyone to … Continue reading
The Stone Man Speaks
Multiple Sclerosis is a curious disease, just as Cerebral Palsy is a mysterious disability. Even after so many years of living with them, they always like to keep me guessing…mostly because I’m no longer sure which one does what. It … Continue reading
Posted in Falling, Spasms, Speech, Symptoms, Talking
Tagged Ami McKay, Cerebral Palsy, Cybil Paulsen, Jack Nicholson, Max Shadow, Multiple Sclerosis
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Little Yellow Magnet – Available Now!
I’m thrilled to announce that Little Yellow Magnet is AVAILABLE NOW! Isn’t that amazing? Here’s a bit about the book: Life can change in an instant. Jamieson learns this the hard way. Waking one morning to find he has … Continue reading
Posted in Little Yellow Magnet, Memoir
Tagged Book Release, Books, Cerebral Palsy, Little Yellow Magnet, Memoir, Multiple Sclerosis
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The Lion and the Internal Orchestra
I’d like to take a moment to talk about pain. Everyone experiences pain differently. Maybe it’s muscle pain or internal pain. Perhaps it’s a mixture of both. For myself, there is no rhyme and reason to it. My Multiple Sclerosis … Continue reading
Posted in Brain Fog, Depression, discomfort, Muscles, Spasms
Tagged Cerebral Palsy, Multiple Sclerosis, Orchestra, Pain, Strength, Symptoms, Tattoos
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Time Heals
I’ve been trying to figure out why I’ve been so out of sorts as of late. It finally dawned on me this evening. It’s the anniversary of my dark time. In 2013, I became sick In January and was bed … Continue reading
Before We Begin Again
See, here’s the thing. I just need to talk to someone. It’s as simple as that, really. I feel like my head is going to pop like that guy in Scanners. I never knew someone could keep so much in … Continue reading
Two Steps at a Time 