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Recent Posts
- Learning to Like Myself – A Reflection
- The Labyrinth of Me
- Levels and Lymphocytes
- The Impossible Mountain
- The Able Body and the Mountain Within
- A Maven Clad In Raven’s Clothes
- The Cyclone That Life Can Be
- A Personal Victory!
- The Language of Smiles
- A Dance with the Waves
- A Journey of Ten Years
- The Lessons I’ve Learned
- Boats of Many Colours
- The Light of Small Joys
- The Deity of the Waves – Thoughts on Chemo and the River Within
- This Is My Journey
- Pushing Through
- Happy Birthday Max Shadow!
- Bodily Able – A Reflection
- The Power of Forgetting
- Captain Maven and the Shadow Man: AVAILABLE NOW!
- The Many Ways of Mavenclad
- The Light Through the Trees
- Someone I Used to Know
- The Challenges I Overcome
Tag Archives: Writing
Learning to Like Myself – A Reflection
As the year begins to wind into darkness, I usually find myself starting to think of the main thing that I’d like to focus on for the year ahead. My focus words for 2025 were Bridges and Boundaries. The intent … Continue reading
Posted in self esteem, Self Harm, self love
Tagged ADHD, Autistic, Cerebral Palsy, Disability, Focus, Introspection, life, Like, love, mental-health, Neurodivergent, Power, Reflection, Self-Like, Self-Love, Words, Writing
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The Labyrinth of Me
I had a Multiple Sclerosis flare up recently. It started with a back spasm during the day one afternoon that left me in a lot of pain. It was all downhill from there. I knew that something was wrong the … Continue reading
Posted in Brain Fog, Fatique, Flare Up, MINOTAUR, Rebel Satori Press
Tagged Balance, Brain Fog, chronic-illness, Dizziness, fatigue, flareup, health, Interview, Jamieson Wolf, life, mental-health, MINOTAUR, Multiple Sclerosis, Rebel Satori Press, Writing
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Levels and Lymphocytes
I feel like my life has been on hold lately. I’m waiting for a fourth round of Mavenclad. It should be my final round of the medication. I’m waiting for my lymphocytes to get to 0.8 and there is no … Continue reading
Posted in Chemo, Mavenclad
Tagged blood levels, health, joy, life, lymphocytes, Mavenclad, mental-health, on hold, positive thinking, release, simple things, Writing
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The Impossible Mountain
It’s not often that I’m made to feel disabled. Objectively, I know I’m disabled. I was born with spastic cerebral palsy and I have relapse and remitting multiple sclerosis. Despite that, or because of the disabilities that I live with, … Continue reading
Posted in Balance
Tagged accessibility, Anger, art, Balance, cafe, Change, creativity, exercise, life, Multiple Sclerosis, narrative, reach out, speak up, thought, travel, Voice, walking, Writing
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The Cyclone That Life Can Be
My adventure continues. I’ve been quiet on here lately. I was surprised to see that the last post on here was from September 2024. Surely it can’t have been that long? The world just seems too big sometimes, does anyone … Continue reading
A Dance with the Waves
A neighbour gave me a gentle telling off today. For the past three weeks, I’ve been going through a multiple sclerosis flare up. I thought I was just tired at first and suffering from burn out. Then that tiredness became … Continue reading
Posted in Flare Up, Multiple Sclerosis, Symptoms
Tagged Balance, diagnosis, fatigue, Flare Up, heal, joy, Multiple Sclerosis, nausea, Painting, push through, relapse, relapse and remitting, remitting, rest, time off, Vertigo, working, Writing
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The Challenges I Overcome
I was asked to give a talk to the people I work with to celebrate the International Day of Person’s with Disabilities. These are the notes that I wrote. I planned to read them out loud, but ended up just … Continue reading
Posted in Autoimmune Deficiency Disease, Challenges, Falling, fatigue, Lesions, self esteem, Small Victories, Spasms, Speech, Symptoms, Writing
Tagged Challenges, Depression, exercise, flat mountains, Grateful, international persons with disabilities day, Overcome, Painting, Small Joys, Talking, Typing, walking, Writing
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Living My Best Life Two Steps at a Time
I was talking to one of my friends about the pain levels I live with. The pain has been so bad lately. In the morning, I have to sit down while I brush my teeth, just so that I can … Continue reading
The Descent and Smashing Tropes
How cool is this? My story, The Descent, which appears in Nothing Without Us, has been referenced in a scholarly blog about disability tropes written by Derek Newman-Stille. Nothing Without Us was special to me and I’m thrilled to have … Continue reading
Stepping Out of the Box and Breaking the Routine
I’ve been struggling a lot lately. I’ve been trying to break out of the box that I’ve put myself in. That box is built on routine. When I was first diagnosed with multiple sclerosis, this routine helped. It helped me … Continue reading
Posted in Brain Fog, MRI's, Neurologist Appointments, People
Tagged life, Routine, Writing
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Two Steps at a Time 