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Recent Posts
- In the Company of Elivra
- Thirteen Years
- Waiting for Max Shadow
- Learning to Like Myself – A Reflection
- The Labyrinth of Me
- Levels and Lymphocytes
- The Impossible Mountain
- The Able Body and the Mountain Within
- A Maven Clad In Raven’s Clothes
- The Cyclone That Life Can Be
- A Personal Victory!
- The Language of Smiles
- A Dance with the Waves
- A Journey of Ten Years
- The Lessons I’ve Learned
- Boats of Many Colours
- The Light of Small Joys
- The Deity of the Waves – Thoughts on Chemo and the River Within
- This Is My Journey
- Pushing Through
- Happy Birthday Max Shadow!
- Bodily Able – A Reflection
- The Power of Forgetting
- Captain Maven and the Shadow Man: AVAILABLE NOW!
- The Many Ways of Mavenclad
Tag Archives: Multiple Sclerosis
The Maybe of Mavenclad
I’m afraid. As September comes ever closer, so does my medication change. During July, September seemed so far away but now as we get to the end of August, September 21st seems so much closer. On that day, I will … Continue reading
Posted in Depression, Fear, invisible disabilities, Stress, Talking
Tagged Changing Meidcation, Maybe, Multiple Sclerosis, Symptoms
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Embracing the Changing Landscape
If having Multiple Sclerosis has taught me anything, it’s to try to embrace change, however much I dislike it. I had another MRI in April of this year, my first in a while. I finally had my MRI follow up … Continue reading
A Star Upon the Waves
I’ve been losing control of myself for a while now. Over the past year, I’ve noticed a worsening in my symptoms. I am in far more pain than I ever have been before. It’s gotten to the point in the … Continue reading
Posted in Lesions, MRI's, results
Tagged Cerebral Palsy, Lesions, Multiple Sclerosis, Sparkle On!, Symptoms
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On What You Can’t See
I was asked to speak at a conference at work about what it is like to live with two invisible disabilities. I immediately said yes. I’m open about my disabilities; heck, I write about it on here for everyone to … Continue reading
Looking for the Oracle
Before I was diagnosed with relapse and remitting Multiple Sclerosis, I thought I could cure myself. Someone had said that it was all about mind over matter. I could choose not to be sick. I could choose my destiny and … Continue reading
Posted in Balance, Brain Fog, Depression, Disability Tropes, Nothing Without Us
Tagged Multiple Sclerosis, Story Behind the Story
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The Stone Man Speaks
Multiple Sclerosis is a curious disease, just as Cerebral Palsy is a mysterious disability. Even after so many years of living with them, they always like to keep me guessing…mostly because I’m no longer sure which one does what. It … Continue reading
Posted in Falling, Spasms, Speech, Symptoms, Talking
Tagged Ami McKay, Cerebral Palsy, Cybil Paulsen, Jack Nicholson, Max Shadow, Multiple Sclerosis
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Little Yellow Magnet – Available Now!
I’m thrilled to announce that Little Yellow Magnet is AVAILABLE NOW! Isn’t that amazing? Here’s a bit about the book: Life can change in an instant. Jamieson learns this the hard way. Waking one morning to find he has … Continue reading
Posted in Little Yellow Magnet, Memoir
Tagged Book Release, Books, Cerebral Palsy, Little Yellow Magnet, Memoir, Multiple Sclerosis
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The Lion and the Internal Orchestra
I’d like to take a moment to talk about pain. Everyone experiences pain differently. Maybe it’s muscle pain or internal pain. Perhaps it’s a mixture of both. For myself, there is no rhyme and reason to it. My Multiple Sclerosis … Continue reading
Posted in Brain Fog, Depression, discomfort, Muscles, Spasms
Tagged Cerebral Palsy, Multiple Sclerosis, Orchestra, Pain, Strength, Symptoms, Tattoos
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Little Yellow Magnet – The Video Series
Hey everyone! I finished a memoir about my trials and tribulations with Multiple Sclerosis in November of 2017. I recently had it edited and hope to eventually find a publisher. In the meantime, I felt compelled to do a short … Continue reading
Happy 2nd Birthday Max Shadow
I almost forgot that tomorrow, August 21st, is Max’s Birthday. Two years ago tomorrow, I was diagnosed with Multiple Sclerosis. I had to learn to walk again, to speak again, to see again. My entire self was wiped away and … Continue reading