Category Archives: Symptoms

The Language of Smiles

The thing is, I know I’m disabled. I mean, I just turned forty-six, so I’ve been disabled for a long time, and I live with it every day. There are times where the act of doing something takes time, or … Continue reading

Posted in Mobility Devices, Symptoms, Walking | Tagged , , , , , , , , , , , | Leave a comment

A Dance with the Waves

A neighbour gave me a gentle telling off today. For the past three weeks, I’ve been going through a multiple sclerosis flare up. I thought I was just tired at first and suffering from burn out. Then that tiredness became … Continue reading

Posted in Flare Up, Multiple Sclerosis, Symptoms | Tagged , , , , , , , , , , , , , , , , , | Leave a comment

The Light of Small Joys

The thing is most of the time I feel okay. I can pretend that there is nothing wrong, that I’m totally fine and I don’t have anything to worry about…but then my mind reminds me of the fact that I’m … Continue reading

Posted in Cerebral Palsy, Depression, Fear, joy, Multiple Sclerosis, Symptoms | Tagged , , , , , , , , , , , | Leave a comment

The Challenges I Overcome

I was asked to give a talk to the people I work with to celebrate the International Day of Person’s with Disabilities. These are the notes that I wrote. I planned to read them out loud, but ended up just … Continue reading

Posted in Autoimmune Deficiency Disease, Challenges, Falling, fatigue, Lesions, self esteem, Small Victories, Spasms, Speech, Symptoms, Writing | Tagged , , , , , , , , , , , , | Leave a comment

On the Shores of Acceptance

I feel like I’ve been waiting for a long time. In reality, it hasn’t been that long, not really. Time is no longer relative and it either speed up or slows down depending on the news you are waiting for. … Continue reading

Posted in Autoimmune Deficiency Disease, Covid-19, Mavenclad, MRI's, Neurologist Appointments, results, Side Effects, Symptoms | Tagged , , , | Leave a comment

Stress and the Shadow Man

I know that stress is one of the worst things for people with multiple sclerosis. I’ve been experiencing a lot of it. It’s keeping me awake at night, so I’m having to take my prescribed sleeping pill more than usual. … Continue reading

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The Stone Man Speaks

Multiple Sclerosis is a curious disease, just as Cerebral Palsy is a mysterious disability. Even after so many years of living with them, they always like to keep me guessing…mostly because I’m no longer sure which one does what. It … Continue reading

Posted in Falling, Spasms, Speech, Symptoms, Talking | Tagged , , , , , | Leave a comment

The Whispering of the Trees

I entered this in the CBC Non Fiction Prize. While I didn’t place in the long list, that’s all good as I can now share it with all of you.   The world had fallen around me. The dark forest … Continue reading

Posted in Memoir, Muscles, self esteem, sex, intamcy, Symptoms | Tagged , | Leave a comment

Listening to the Body is the Hardest Thing to Do

As much as I’m thankful for the multiple sclerosis and what it’s taught me, there are times that it makes me angry and pisses me off. There is so much that I try to do and, most days, I succeed. … Continue reading

Posted in Brain Fog, fatigue, Insomnia, Spasms, Symptoms | Tagged , , , | Leave a comment

I’m Alive For This Moment

On Wednesday last week, I had an appointment with my neurologist. This is a joy for me. My doctor is a delight and makes going to the hospital a joy. She’s always upbeat and I feel as if I’m meeting … Continue reading

Posted in Depression, Doctors, Falling, Fatique, Insomnia, MRI's, Symptoms | Tagged , , , , | 2 Comments